Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Does anyone have any idea how many children are afflicted by this disease? I belong to IOF Foresters & I am going to be sending letters to them asking for donations to the fund. Sometimes we can get matching funds for different things where children are involved. I have not been involved personally for a few years so I don't know what is happening on the local level as far as handing out funds are concerned. If someone could get me that info I will try to get letters out Thurs. or Fri. I know the ratio is 3.5 per million & that it is usually middle age, late 40 - early 50. Thanks, Susiecue Quote Link to comment Share on other sites More sharing options...
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