Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 0-3 mm is normal <6 mm is very mild 6-10 mm is mild 10-15 mm is moderate 15+ mm is severe Molly Novato, California Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 5.5 , 9 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Burt & Jacqui Sent: 5 February 2009 01:39 Plagiocephaly Subject: [sPAM] Carpenter2077 Just wondering how everything is going for your daughter. (and you!) Have you noticed any improvement? Is she sleeping more comfortably? Jacksen's appointment is quickly approaching. He gets his band on Monday 2/9. I was curious as to what your daughter's " measurements " were at consultation. Jack's are as follows: Cranial Vault Asymmetry - 6mm Mid-Face Asymmetry - 2mm Skull-Base Asymmetry - 2mm I've tried to research what each is really measuring but it gets confusing. And I'm not sure what is considered a " normal " range. I look forward to hearing from you! Jacqui Burt, Jacqui & Jacksen 30 Ansley Court Inwood, WV 25428 http://web.mac.com/bsoltero/ From: sarahcarpenter2077 <sarahcarpenter2077@...> Subject: burtandjacqui Plagiocephaly Date: Thursday, January 29, 2009, 9:18 PM I think it would be great to keep in touch about this. It would be great to talk to someone who is new at this too, I feel like I'm even using the wrong terminology here! I guess I should be calling the " helmet " a 'band " . Anyways, tomorrow we will be putting the band on her for 6 hours during the day and then she is supposed to wear it to sleep in for the first time. I'm pretty worried because she won't even nap in it yet! I'll write a post to let you know how it goes! I look forward to hearing how your first fitting goes, good luck I look forward to hearing from you soon! > > > > My 8 month old daughter was diagnosed with positional plagiocephaly > > early in December. We have just recently got her helmet, and I was > > wondering if anyone would be willing to share their personal > > experiences with the helmets. I am not fully convinced that we made > > the right decision to get her the helmet. > > > > The Neurologist that we saw told us that she felt that helmets were > > a " racket " and that there is a lot of false information passed on to > > parents by Physical Therapists. (my daughter also goes to PT for > > tortocollis) She said by the time children are 5, you can't really > > tell who wore a helmet and who didn't. She also told us that if it > > got to be a hassle, not to worry if we decided not to continue > > wearing the helmet. She left the final decision up to my husband and > > me, our insurance covered the helmet fully so we decided to get it. > > up > > My daughter's head sweats like crazy, I mean it is actually dripping > > out of the helmet, and she is pretty cranky towards the end of the > > wearing period. (we're only up to 6 hours) I tried to have her nap > > in it today, but she wouldn't. My husband and I are pretty upset, > > and we're worried that we are putting our baby through wearing this > > cumbersome device for nothing. I guess it would be helpful to > > mention her plagiocephaly is " moderate " . > > > > I would appreciate any feedback, thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 THANK YOU, Molly! That is good information to have. I appreciate you taking the time to respond! JacquiBurt, Jacqui & Jacksen - receives 1st DOC Band on 2/9/08 From: sarahcarpenter2077 <sarahcarpenter2077> Subject: burtandjacqui Plagiocephaly Date: Thursday, January 29, 2009, 9:18 PM I think it would be great to keep in touch about this. It would be great to talk to someone who is new at this too, I feel like I'm even using the wrong terminology here! I guess I should be calling the "helmet" a 'band". Anyways, tomorrow we will be putting the band on her for 6 hours during the day and then she is supposed to wear it to sleep in for the first time. I'm pretty worried because she won't even nap in it yet! I'll write a post to let you know how it goes! I look forward to hearing how your first fitting goes, good luck I look forward to hearing from you soon! > > > > My 8 month old daughter was diagnosed with positional plagiocephaly > > early in December. We have just recently got her helmet, and I was > > wondering if anyone would be willing to share their personal > > experiences with the helmets. I am not fully convinced that we made > > the right decision to get her the helmet. > > > > The Neurologist that we saw told us that she felt that helmets were > > a "racket" and that there is a lot of false information passed on to > > parents by Physical Therapists. (my daughter also goes to PT for > > tortocollis) She said by the time children are 5, you can't really > > tell who wore a helmet and who didn't. She also told us that if it > > got to be a hassle, not to worry if we decided not to continue > > wearing the helmet. She left the final decision up to my husband and > > me, our insurance covered the helmet fully so we decided to get it. > > up > > My daughter's head sweats like crazy, I mean it is actually dripping > > out of the helmet, and she is pretty cranky towards the end of the > > wearing period. (we're only up to 6 hours) I tried to have her nap > > in it today, but she wouldn't. My husband and I are pretty upset, > > and we're worried that we are putting our baby through wearing this > > cumbersome device for nothing. I guess it would be helpful to > > mention her plagiocephaly is "moderate". > > > > I would appreciate any feedback, thanks! > > > Quote Link to comment Share on other sites More sharing options...
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