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Josh's Make-a wish story

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Hi Everyone,

The Regional and the Statewide chapters of the Make-a-wish foundation have

featured Josh's story in their News letters. I thought you all may be

interested in reading it.

Also those who answered my email about the strange lump, it is really nothing

just a " cyst " like lump that will probably go away on it's own.

Thanks for your replies.

Mom to Josh 9 wcf & Crohn's and 4 nocf but wants to do

therapy for

his brother.

P. 

Nine-year-old wish child from the Berkshire town of Peru is like many

boys his age. He enjoys playing soccer, reading Harry Potter books and loves

watching his favorite cartoon character Sponge Bob Square Pants. A straight A

student, he is the apple of his 4-year-old brother Sam’s eye. So much so that

on days Josh doesn't want to take his daily medications or have his respiratory

therapy, Sam offers to do it for him.

 

Diagnosed with Cystic Fibrosis at the age of 3 ½, Josh has striven to be a

regular kid. According to his parents, and Neil, although Josh faces so

much day-to-day, he takes his disease in stride.   When he saw a boy with CF

on television talking about his Make-A-Wish experience Josh asked his parents,

“Can I have a wish?â€Â  Shortly thereafter, Josh’s special wish was brought

to

our attention.

 

On the day his Make-A-Wish volunteers came to visit, Josh stood at his front

door eagerly anticipating their arrival.  In colorful detail, he described his

lifelong dream of getting a behind-the-scenes look at how a cruise ship was

run.  “I want to be Captain of a cruise ship!†he announced.   

 

As the family requested traveling during school vacation. it would be six

months before Josh’s wish would be realized.  He counted the days on the

calendar

that hung over his bed and each day he added items to the list of things he

wanted to bring on the cruise.  “During those six months, he talked about his

wish every single day,†said . “It was such a welcome diversion for

him from the daily challenges he faces.â€Â Â 

 

With no more days to cross off on his calendar, Josh could barely contain his

excitement.  When a shiny black stretch limousine pulled in their driveway to

escort the family to the airport, Josh only wished it were a school day so

that his friends could see him drive by.

 

Upon boarding the ship in San , Puerto Rico, he was greeted by a

representative from the Cruise Lines who presented him with his very own

captain’s

shirt and hat.  Throughout the weeklong cruise, fellow crewmembers stopped to

salute their new Captain whenever they passed him on the ship.  Josh and his fa

mily visited the ship’s bridge where they were given a private tour and met

the

ship’s ‘real’ Captain. Josh asked him all the questions he had been

rehearsing for weeks. 

 

On his much-anticipated ninth birthday, Josh swam with live dolphins and

returned to the cabin to find it decorated with balloons, streamers and a

birthday

cake.  “Yes, Josh’s illness was still present during his wish, but with so

much to look forward to, it made it that much easier.  We could put it aside

and focus on the fun things we would do as a family,†said.  

 

“We, his parents, got the ultimate wish,†Neil and shared. “It is

what every parent wishes for their child -  days spent without a care in the

world.  The happiness that was on Josh’s face everyday of that trip will be

etched in our minds forever.  What wonderful  memories you have given to our

family to hold in our hearts and to lean on when the going gets tough.â€

 

Months later, Josh continues to talk of his wish and enjoys looking at the

photographs from the trip. The family sings songs they learned on the cruise and

often reminisce about the fun they had.  This summer, Josh will put together

a scrap book complete with photos and mementos from his Make-A-Wish

experience.  “The whole experience gave us a special time as a family,â€

said. “

We look back on his wish with such fondness.â€Â 

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  • 3 weeks later...
Guest guest

WOW! What a wonderful wish come true! I always thought that Make-a-wish

wouldn't be something for our daughter but after hearing Josh's story I'd

like to find out more. Please let me know how you went about making the

wish come true. Thanks - Kathy G. (Mom to age 9 w/ CF)

Josh's Make-a wish story

Hi Everyone,

The Regional and the Statewide chapters of the Make-a-wish foundation have

featured Josh's story in their News letters. I thought you all may be

interested in reading it.

Also those who answered my email about the strange lump, it is really

nothing

just a " cyst " like lump that will probably go away on it's own.

Thanks for your replies.

Mom to Josh 9 wcf & Crohn's and 4 nocf but wants to do

therapy for

his brother.

P.

Nine-year-old wish child from the Berkshire town of Peru is like many

boys his age. He enjoys playing soccer, reading Harry Potter books and loves

watching his favorite cartoon character Sponge Bob Square Pants. A straight

A

student, he is the apple of his 4-year-old brother Sam’s eye. So much so

that

on days Josh doesn't want to take his daily medications or have his

respiratory

therapy, Sam offers to do it for him.

Diagnosed with Cystic Fibrosis at the age of 3 ½, Josh has striven to be a

regular kid. According to his parents, and Neil, although Josh

faces so

much day-to-day, he takes his disease in stride. When he saw a boy with CF

on television talking about his Make-A-Wish experience Josh asked his

parents,

“Can I have a wish?†Shortly thereafter, Josh’s special wish was brought

to

our attention.

On the day his Make-A-Wish volunteers came to visit, Josh stood at his front

door eagerly anticipating their arrival. In colorful detail, he described

his

lifelong dream of getting a behind-the-scenes look at how a cruise ship was

run. “I want to be Captain of a cruise ship!†he announced.

As the family requested traveling during school vacation. it would be six

months before Josh’s wish would be realized. He counted the days on the

calendar

that hung over his bed and each day he added items to the list of things he

wanted to bring on the cruise. “During those six months, he talked about his

wish every single day,†said . “It was such a welcome diversion for

him from the daily challenges he faces.â€

With no more days to cross off on his calendar, Josh could barely contain

his

excitement. When a shiny black stretch limousine pulled in their driveway to

escort the family to the airport, Josh only wished it were a school day so

that his friends could see him drive by.

Upon boarding the ship in San , Puerto Rico, he was greeted by a

representative from the Cruise Lines who presented him with his very own

captain’s

shirt and hat. Throughout the weeklong cruise, fellow crewmembers stopped to

salute their new Captain whenever they passed him on the ship. Josh and his

fa

mily visited the ship’s bridge where they were given a private tour and met

the

ship’s ‘real’ Captain. Josh asked him all the questions he had been

rehearsing for weeks.

On his much-anticipated ninth birthday, Josh swam with live dolphins and

returned to the cabin to find it decorated with balloons, streamers and a

birthday

cake. “Yes, Josh’s illness was still present during his wish, but with so

much to look forward to, it made it that much easier. We could put it aside

and focus on the fun things we would do as a family,†said.

“We, his parents, got the ultimate wish,†Neil and shared. “It is

what every parent wishes for their child - days spent without a care in the

world. The happiness that was on Josh’s face everyday of that trip will be

etched in our minds forever. What wonderful memories you have given to our

family to hold in our hearts and to lean on when the going gets tough.â€

Months later, Josh continues to talk of his wish and enjoys looking at the

photographs from the trip. The family sings songs they learned on the cruise

and

often reminisce about the fun they had. This summer, Josh will put together

a scrap book complete with photos and mementos from his Make-A-Wish

experience. “The whole experience gave us a special time as a family,â€

said. “

We look back on his wish with such fondness.â€

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