CF/MISC WITH GRANDMOMBEV

[Guest guest]

HOWDEEEEEEEEEEEE EVERYONE ! ! !

aNOTHER MONTH HAS MOVED RIGHT ALONG-----BUT SO FAST. HEY SLOW DOWN YOU

ALL :)

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i WISH ALL OF YOU COULD PICK P THE LITTLE FACES FROM MY HOTBAR

THINGY-THEY ARE SO CUTE:)

WELCOME TO ALL OF YOU WHO HAVE JUST JOINED US.ALSO------aLL THE FOLKS

WHO HAD BEEN LURKERS OR VACATIONERS WHO HAVE COME BACK..wE WELCOME EACH

& EVERYONE OF YOU..

RAY G..I was so very happy to see your posts. It means allot to know so

many are here & doing well. & I am so happy to hear your even doing

better now. You always have so very much experience to offer us. Hi to

your other half too.

MO-(wildfaerie).Super glad your doing so well & VERY happy to hear about

the wonderful man in yours & the kiddos' life. Your little group sound

like a great family to me. I know you'll have a lovely summer .

Remember I always keep the light on for my cyber families here in

ORLANDO-------

KELLY -I love your new screen name.:findacureforcf@...) it is so

positive, as I said before.BUT many will join me in that opinion too.I

am SURE!!:)

NORMA JEAN.. Hoping this finds you doing better and finished with many

of the tests you had been scheduled for. I am glad your getting to sat

least get some different folks to se you. One just might find the real

answer. At least no one can say you haven't checked with lots of

sources.Prayers coming your way ..........

GREG. thanks so very much for your updates on Tricia. that was very

helpful . We were all worried . I hope this finds you doing well also.

DANA. prayers an all sorts of special wishes & prayers for our-your

sweet DOUG. it is nice that the breathing is so good for him . Soon all

the parts will be working together & get those bugs out . take care of

you too........We are here for you both as needed. Love the updates ...

VERONICA V.. Nice to see your post.Your right-It has been a long time.I

agree with you about 's survey -Its a good thing. might offer

some help to many .By the way Medicaid is different in different sates.

BUT-As far as I know , both TOBI & ULTRASE is covered .at least for sure

in FL.Your best source of info on the Medicaid coverage is at their

office or your clinics MSW. they should know off the top of their heads

BUT ALSO -should have a list of covered items, They do it enough in the

clinic to know....Take care..

TERESA A..Such great news for Sydney's report . " A clean bill of health "

-WOW-that is truly what we all like to hear . peds or adult!!!

they were right saying that the polyps were quite common -that is a true

statement. They come & go as well. I am sure the doc will schedule some

time to " get'em outa there " if ever that happens.It seems as you have a

very nice doc........

JENNIFER ..We are happy for you about the wee one on the way &

have prayers for it to be well. You will do as you need to and I just

wish you all the best in the years ahead. keep us posted..

APRIL .. Glad your doing so well . It has been awhile & I am so

happy that your TX HAS BEEN GOING SO GREAT. I know having in your

life has been such a wonderful help & comfort to you. He sounds like a

really nice guy too. I am happy for you:):)I am very sad for your

friends & there loss.

DAELYNN. GOSH oh Gollee, You have really had a full time of it all!!

It is so true that once someone in family gets infection-it just runs

thru you all. I am so sorry-even the dog??? oh, well at least you all

didn't get the worms too:):)hehe.By the way. Did you pick the date for

your legal " stuff " ? that is too funny?? that its on same day as

anniversary--I am happy to hear he will do well with them when he has

them . that has to make you feel better on that. those times will really

be a break for you if that will continue & you don't have to worry .

Bless your heart. take care of you . I love hearing from you!!

ALICE V.. gosh , so many with the " peeling hands " .It sure is a bother

to many. BUT I have seen /heard of allot of remedies -I sure hope they

will work for many of you all.I very much do this it has at least

something to do with CF.or is aggravated by it or the meds taken.take

care & write again soon

DENISE F I hope the person needed work for a spouse answered your offer.

That was soo nice of you . I guess when asked these great lists

come thru . many folks aren't sure what to ask about here but

REALLY-Anything goes-just about :) true support list!!

FAELA S.. Hope your 3 month check up was good. I didn't see your

follow-up report . I hope & pray it was good.You seem to have a way with

words so write on .we love it :0

SHERIDAN. happy 34 th Birthday again.it is wonderful to hear those

numbers at any time BUT especially over 30 :) I wish they wouldn't

put years in that dumb literature. it is great to have birthdays & know

its because you are doing well. I know , you have many issues to deal

with & I am sure loads of meds. BUT you have come to 34 years-YEAH!!!

We are very glad you've come to these lists & happy you've learned much

as well.We all feel that way.AINT IT GRAND!!!??

DAVID L.. gosh, I sure hope you gave that call to clinic & spoke to them

about the blood. I am sure your doing well BUT .let us hear what they

had to say.We too, will learn from your experience:)

RANDY.YES, YOU!! thanks for all your help with each person who needs

with the vest. you do a great job & make all feel very calm about the

wee problems or questions they ask . thanks !! & thanks to Advanced

Respiratory who makes the VEST............

TRICIA,, I am happy your home & very pleased you likes the doggie

It is nice to have something for the medical staff to talk to you about

, besides your health too :) Stay feeling better.then get to BEST

feeling really soon -LOVE YA!!

SHANNON S..Hey gal, you are sure putting in those school hours. I am so

proud of you.-that was very good news on Greg too. Its always nice when

the doc is happy for him..He will be thrilled when that trach comes

out. It will be a relief.!! I know for you to hear his voice will be

like music. Hopefully that call will come this summer. It has been a

long time . Bless you both .........

JENN/RON. i know your in Canada now & having a blast with the kids & all

the folks -those who drop in too. Say a big hello to them for me . I

would hope your sisters & their group come up as well. How is daddy

doing are they going to get up also??Give them a hug & kiss for me ..(of

course, don't forget your hunk Ron). those babies of your are getting

sooooo big, I bet I wont recognize them,Take care .I look forward to

your trip down here later too.

KATHRYN.I hope 2nd wind will be able to get lots of sponsors soon.

I will try to help in that area. maybe some of the companies I deal with

can be persuaded to join in a bit & help .I would love to have another

conference ........That would be so informative & lots of fun too.I'll

be getting back with you .

AGNES, Howdee to you , & bob. I am hoping the summer studies are

going well Also how does like the navy " stuff " ? I sure hope its

what he thought it was going to be..

Jill, its getting almost time for company :) But before that I will

get to see you at least a day in July at CFRI .PLEASeeeeeeeeeee.

You can stand with me at my exhibit -hehehaha. thanks for all your

support on the list . you handle " stuff' so well -You & Agnes do a great

job-as did Hal.see ya soon.

BRENDA. Glad to hear you all in your house are doing well. keep it up &

thanks again for your great support on this lists

LISA How are the fund raising plans for the MILAN Foundation. such a

great cause. I know you have been really busy with it. BUT give us all

an update.AND , how is sweet Milan doing. I know she loves summer fun.

Hope she is having a ball !

JOAN B.. I hope your feeling better about your PARI 3000 You will find

it is fine & will do all it is supposed to do. Have a great trip . take

some pictures & be sure & send me one for the INFORMER too.

FRED. it was very nice to see your post . have fu on your excursions..

MARION R.. I do pray this post fines you doing well I know you haven't

been up to par m, but you just have to stop all that traveling around.

-I know it was fun .but take a break now & get rested. we love ya &

don't want anything to happen to you!!

KATHY -little Greek gal ..I do hope your doing well let us know how the

eval went . it has been a rough time last weeks . memories are still

with us & will stay. Give that great a hug from CYBER

GrandmomBEV....

CLOYCE & all the family . The news will be good when you post next . I

just know it will Tara will keep getting better & better news too. That

sweet little guy of yours I have held in my prayers too . BUT -As always

I have to tell you to take care of YOU!!:)

LISA Turley. I really think all the sweet & cute messages you send are

so nice .Bless you. hope your family is pulling it all together now.

post me an update soon.

OH , gollee.it is getting time for me to get outa here:):)

I think it is going to shower too. Soooooooo Until tonight , tomorrow.

next week Whenever you read this . take care & God love ya!!

LOVE & HUGS,

grandmoMBEV

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