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Update on Shaelin

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Shaelin had his follow-up at Childrens last week and overall is doing

well. His lungs sound great so the pulmonologist is going to try to

decrease his Flovent from 110 mg BID to 44 mg BID. If he continues

to do well, she may have him use it only for respiratory exacerbations

..

I inquired about the vest and she is going to have us meet with PT

there in October for an evaluation. Aside from size, I don't know

what they use for criteria. Does anyone else know what they look for?

His weight is increased slightly. He is now 29.1 lbs. His stools

however remained unformed so she has increased his Pancreacarb MS 8

to 4 tabs with meals. So far, I haven't seen any improvement.

I also asked her about magnezium supplementation and she said they

don't recommend it unless a magnezium level is low. She did add that

to his yearly labs which are due. Does anyone know if this is an

accurate picture of the need for magnezium?

If anyone has any suggestions, feel free to let me know.

Jeanne (foster Mom to Shaelin, 28 months wcf)

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