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Re : Pain and Memory

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Hello Lin,

Yes! I certainly " forget " the pain and other symptoms when I'm going

through a good patch. I tend to think I must have got my diet/enzyme

mix right at last or that I'm going into burnout.....and then back

come the symptoms! You're right about it being like a cruel joke.

When I feel well, I really do feel well and full of energy but I

always know deep down that things can change in a moment. When I was

a child, when nobody knew what was wrong, I was pretty desperate for

two (separate) weeks each year but completely normal in between. I

assume the pancreas becomes inflamed and then hurts. When the

inflammation goes down, it stops hurting. At least, that's how I

imagine it is. Now that my pancreas is atrophied and calcified

throughout, the picture is different, of course, and over the last

few years, I've had much more frequent attacks, sometimes two or

three bad days every week. Over the last few weeks I had a very good

spell for several weeks but last week was bad again with that

nauseous and weak feeling as well as pain etc. In the 1980's my

attacks, then accompanied by appalling steatorrhoea, happened every

few months, then every few weeks, then every week, then nearly every

day by the end of the decade and I lost a lot of weight. Things were

much more settled in the 90's because I changed my diet, not because

I knew I had pancreatitis but because an incorrect diagnosis of

coeliac disease was made. Certain dietary changes helped just

coincidentally, I think. Or maybe that particular spell was just

over!

Yes....a very odd and horrible disease and it goes through different

stages!

I think Heidi's advice about keeping a diary is an excellent idea as

you may be able to trace an attack back to something specific. I

don't seem to be able to do that at the moment but if you try it,

you may find out some of the triggers for you personally.

I can't help about the morphine as I take codeine for the pain. I DO

wish you a very settled time ahead and as many pain-free days as

possible! Enjoy that snow.....very seasonal! We hardly ever have

snow in England at Christmas. The bookies are quite happy to take

bets every year on a white Christmas, knowing that, by and large,

they'll make wads of cash!

Best wishes,

Fliss

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