Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 > Like I was telling Sandy I want to see that doc so I can be Cured > too. If ercp with sphincterotomy cures SOD then why do > sphincteroplasties even exist? You need a new doc. Actually I like > having a female pcp. I shopped around a lot until I found someone > that I can relate to that understand the hormones, and isn't > condisending about it. thats also a working mom. Women seem to be > more realistic and understand. > Warmly > , Who told you Sphincterotomies cure SOD?? Sad to say, but that is wrong...they are a temporary measure to a permanent problem. I appreciate your concern, but I don't need a new Dr. For me, I only had six months of relief from the Sphincterotomy, and the Sphincteroplasty didn't work much longer than that. That was why I had a Whipple. Even with the Whipple, I am not cured, nor will I ever be. I have too many problems. We are hoping for pain relief and five months out, I don't have it yet, and according to the docs now, probably never will. My next step is a total pancreatectomy, which I won't be doing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 I am very sorry I had offended you that was most certainly not my intention. I must have misunderstood your statement that the doc told you that you no longer had pancreatitis. I have been under the impression that once you have cp you always have cp unless you have tp. I do aplogize for having misunderstood. > he said I probably had > SOD, which should have been fixed by the sphincterotomy and stent. In his > opinion I didn't need the second stent. At this point, he doesn't think the > pain is from my pancreas at all, because it is a constant, vice- like grip > around my right side, that gets worse with activity, especially any type of > workout. He said pancreas pain usually comes and goes, since the pancreas > is an organ that moves and changes. So, even though I might have had > pancreatitis after the first stenting, he no longer thinks I do. > > > > > -------------------------------------------------------- > This e-mail and any files transmitted with it are confidential and intended solely for the use of the > individual or entity to whom they are addressed. > If you have received this e-mail in error please notify the system manager: > postmaster@m... > This e-mail and its attachments have been scanned for the presence of computer viruses, however > it is always advisable to run a virus check on e-mails and attachments before opening them. > -------------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Thanks for the kind words. I told my husband today this is all new territory for me. I'v never really depended on anyone for financial support. Like I said, I was always the major breadwinner. Maybe the fates have decided it's my turn to learn how to depend on someone else. Tammy > Hang in there. I am also diagnosed 2 yrs now with cp. I have various > side-effects other than pain, mainly neurological that prevents me from > doing a hi-tech job I have held for over 10 years. > ADVERTISEMENT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Tammy: I have really tried to look for the good that has come out of me being sick. The best thing has been my improved relationship with my husband. We are closer than ever. This has forced me to concentrate on the things that I do have in my life, instead of the things that I don't have. It's easier to do the second, but more rewarding to do the first. So, before I was sick, both my husband and I had so many separate interests, that we didn't have much that we shared. Of course, we thought we were happy. But once I had to give up so many of the things I used to do to keep busy, suddenly, I had to think was I really that happy? We have been to counseling, and have made alot of changes in our marriage. I also really know the meaning of unconditional love, because many of my friends have bailed on me, but my husband keeps telling me that this has made me more vulnerable, and I always acted like I didn't need him. Now sometimes I really, really need his support. And that makes him feel needed, and good. I never wanted to be a burden to anyone, but some days without his support, I just don't know how I would have made it! And now I really believe that no matter what he will never leave me. I have never felt like that about anyone. I was very distant from my family growing up, in fact spent most of my life in boarding schools. So, to finally know (after 45 years) what real love feels like, it's almost worth it to be sick! Hang in there Tammy, God have never given me more than I can handle. HUGS, Robin Re: Robin Thanks for the kind words. I told my husband today this is all new territory for me. I'v never really depended on anyone for financial support. Like I said, I was always the major breadwinner. Maybe the fates have decided it's my turn to learn how to depend on someone else. Tammy > Hang in there. I am also diagnosed 2 yrs now with cp. I have various > side-effects other than pain, mainly neurological that prevents me from > doing a hi-tech job I have held for over 10 years. > ADVERTISEMENT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi, I don't post too often but when I saw your post I just had to reply. I too, believe that all my problems started after the removal of my gallbladder. Within 6 hours of waking from the surgery, I had this huge attack of severe pain and vomitting for a couple of hours. The pain and discomfort I felt from the gallbladder was nothing compared to the pain after. Of course the nurse did not take my blood. So my enzymes were never checked, she said it was just gas! I was frantic and seriously thought I was having a heart attack. Funny too that the dr.s report said I did well with the surgery and was discharged after 24 hours. Wrong, I was discharged after 48 hours feeling like I had been hit by a truck. I then had 2 years of suffering these attacks and I would see my family doc the next day and try to explain this to him. He said I was having severe acid reflux. He never checked my blood or anything. I believe the damage has already been done and now I am just trying to get some kind of confirmation if I truly have CP or not. Hopefully I will find out some day soon. I'm glad you have a good dr. working with you. I makes things much easier to manage. Thanks for the post. Take care Kris > > I hope this morning you are feeling better. I was so afraid last night when I went to bed that I would wake up in the morning ready for my oxycontin, but I was OK. Thanks for letting me know that you had the same changes in your medication and how it worked for you. I still am having quite a bit of pain in my back, but I think it might have something to do with the doctor pressing very hard down on my liver, so hard to make tears come to my eyes. He said my liver felt sort of large, and since it was tender there was a good chance this was as a result of other nearby organs being inflamed also. I really liked him. He's the first doctor to associate my gall bladder removal with the cp. He said he has one other patient with cp as a result of her gall bladder. He said before he mostly always saw cp as related to alcohol. It is more related to gall bladder problems now. I know this has come up in discussions on the board before. I'm positive that is how I got mine. Since it was a year and a half between my gall bladder removal, and my first ERCP, I believe I sustained damage during this time. Hopefully, I won't damage it anymore by incorporating all the do's and don't of having cp! > > By the way Mark, thanks for all the info that I have used on the Top5Plus5. That's alot of work, that I'm sure people refer to often. I know I've used it...and referred others to it. So, here's an attaboy for you! . > > It's a beautiful day here on the Eastern Shore of land. 50 degrees and sunny! > > Robin > > > -------------------------------------------------------- > This e-mail and any files transmitted with it are confidential and intended solely for the use of the > individual or entity to whom they are addressed. > If you have received this e-mail in error please notify the system manager: > postmaster@m... > This e-mail and its attachments have been scanned for the presence of computer viruses, however > it is always advisable to run a virus check on e-mails and attachments before opening them. > -------------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
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