Fw: Welcome to Rpolychondritis

[Guest guest]

Hi everyone,

This is a brand new member that needs help, so I hope you will give her a wonderful welcome and hopefully someone will be able to respond to her queries.

Thanks so much,

W

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Re: Welcome to Rpolychondritis

My name is Sharon and I have just been dx with Rpolychondritis 3 days ago. I am in a lot of pain in my left ear. I also have Sjogren's Syndrome, Fibromyalgia, Raynauds--the list goes on. Today my ear is a lot more painful. I am afraid. The doctor put me on some gout medication which I haven't taken yet. I went to ER on Sat. and that doc said I had (after giving him my opinion) bacterial dermatitis. I saw the ENT doc on Mon morning and he dx me and said I had to see my Rheumy. I saw him on the same morning and told me to continue to take the Augmentin that the ER doc prescribed for me and then to start on the gout meds. Why gout meds? Do a lot of you have this much pain? I just had surgery on March 11th for an endometrial ablation and that seemed to aggravate the situation. I remember the first time I woke up with my left ear all swollen and hot and painful--I thought I had an infection from an earring since I am so sensitive to certain types of earrings. Silly me, it couldn't be that simple:( Also I just lost my dad who went through a terrible death on the 1st of Jan. and lost my mom 13 months before to cancer. I don't know how much this new disease is caused from being a nervous wreck because I am and I don't know how much is caused from--being the disease. I thought the Sjogrens and the other autoimmune diseases were a lot to deal with, and they are--I Iive at doctor's offices. Please, can you share some of your information with me--how you were dx, what meds help, how bad this can get etc etc. I am really, really having a hard time right now. Thank You, Sharon