Saw Dr. Lo today

[Guest guest]

Hey guys,

I am a little down in the dumps today. I had my apt. to see Dr. Lo

today. First of all it didn't star off too well. A 27 mile drive

took 2 hours and 45 mins. on the jambed 405 fwy. It is the worse fwy

here to be on!!! To make things worse I had to endure my husbands

driving anf he makes me car sick. Even my six yr. old says daddy

can't drive! I had a 2 hour wait to the dr., but as usual it was

worth it because he spent a ton of time with me too. All of my blood

work came back. Negative for the mutated cf genes all 86 of them.

The bad news is that not only do I have pancreas divisum but I also

have SLE or Lupus. He had this test ran twice to be sure. There was

also a test called anti-nuclear AB (titer) that was twice the normal

range which indicated autoimune disease. He said basically that my

body thinks my pancrease is a foriegn object and is rejecting it.

Also a test call IGG 1, which was double the normal range which he

says confirms this diagnoses. The only treatment he said there is

Prednisone, which I have already been on since Thanksgiving (for my

asthma) and it is not working. I am so depressed. I had myself all

set up for a quick, " oh yeah, I know whats wrong , lets go in and fix

it, so you can have a life again " Big disappointment. My husband is

on a downer too. He kept asking the Dr. if he couldn't just go in

and attach the bile duct that isn't attached and then have me be

fixed. Dr. Lo said surgery is a last resort. My triglicerides are

also a little high so more pills to take for that. He is hoping that

will make a differance. Does anyone else in the group have autoimune

pancreatic disease? If so what treatments have been tried? Any

suggestions would be greatly appreciated.

On a better note he said to e-mail him the link for the group he is

very interested in us! He has a symposiom coming up at the end of

the month so he will busy until then but he wants the info anyway. I

am taking all of my test result to my regular internal meds. dr. on

Thursday, hopefully he may have some ideas too. When I called his

office today and told his office manager/nurse the test results (I

aslso faxed them to her) her reponse was " My God! How much are you

going ot have to deal with? This is too much for one person to live

with. Also my sedimrentation rate was over the limits too, does

anyone know what this means?

Well, thats the jest of it for now. More blood work to be done this

week and I ahve eat high fat meals before them to get an accurate

reading of the triglicerides. Oh yummy. I think I'll go to crispy

creme and this little hamburger stand in " the valley " that has the

best french fries. They are so good because they fry them twice and

then season them with spices, and you dip them in ranch dressing.

What the hell, if I am going to pay the price for it I might as well

get what is super yummy!

Simi Valley, CA