SaraRe: Everyone is so helpful

[Guest guest]

Wow! that's really rude! I would have been po'd too.

I am so nervous when we go out to eat or to someone's home that they

will freak out about our little medical routines. Pills,

applesauce, wiping everything before touching, etc.

So far no one has crossed me yet. Some waiters balk at me wiping

the high chair down before Zach sits in it, but I just keep on

wiping. Luckily Zach is such a friendly little guy that he is so

busy flirting and no one bothers us about the meds. Hope it stays

that way!

Sara, mommy to Zach 17 months wcf

> > > > > As a new parent to this group I would like to thank you

all

> > > already I

> > > > > have learned and began to understand many things to come.

My 5mo

> > > wcf

> > > > > is currently in the Hospital for a " tune-up " now. I feel

like i

> > > have

> > > > > someone to talk to if i need it and that is a vast

improvemnet

> > > from a

> > > > > week ago. No one in the family understands and when i talk

about

> > > what

> > > > > we have to do every day they freak out or get sympathetic.

I do

> > > not

> > > > > need sympathy. I am very concerned with his condition at

this

> > > time.

> > > > > He is not gaining weight and then we checked in here

because he

> > > was

> > > > > dehydrated and down 5 precious ounces. The doc has ordered

us to

> > > > > concentrate the formula to 27 cals and hopefully this will

help.

> > > > > I have been following all the info on the g-tubes and such

and

> > > am

> > > > > grateful to have some knowledge for if this comes up and i

fear

> > > that

> > > > > it prob will. Again thanks for all the info.

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

> MEDICATIONS OR TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

[Guest guest]

We have been the subject of some odd looks too. No matter if it is wiping down

a table, giving enzymes or salting the food-I always use the same line. I look

at who ever I am with and say " Wow, you would never think the doctor would

recommend all this.......But then again you would never know that has a

medical condition to look at her either " This usually embarrasses them enough

that we aren't stared at any longer.

Mom of , 4 & !/2 with CF

SaraRe: Everyone is so helpful

Wow! that's really rude! I would have been po'd too.

I am so nervous when we go out to eat or to someone's home that they

will freak out about our little medical routines. Pills,

applesauce, wiping everything before touching, etc.

So far no one has crossed me yet. Some waiters balk at me wiping

the high chair down before Zach sits in it, but I just keep on

wiping. Luckily Zach is such a friendly little guy that he is so

busy flirting and no one bothers us about the meds. Hope it stays

that way!

Sara, mommy to Zach 17 months wcf

> > > > > As a new parent to this group I would like to thank you

all

> > > already I

> > > > > have learned and began to understand many things to come.

My 5mo

> > > wcf

> > > > > is currently in the Hospital for a " tune-up " now. I feel

like i

> > > have

> > > > > someone to talk to if i need it and that is a vast

improvemnet

> > > from a

> > > > > week ago. No one in the family understands and when i talk

about

> > > what

> > > > > we have to do every day they freak out or get sympathetic.

I do

> > > not

> > > > > need sympathy. I am very concerned with his condition at

this

> > > time.

> > > > > He is not gaining weight and then we checked in here

because he

> > > was

> > > > > dehydrated and down 5 precious ounces. The doc has ordered

us to

> > > > > concentrate the formula to 27 cals and hopefully this will

help.

> > > > > I have been following all the info on the g-tubes and such

and

> > > am

> > > > > grateful to have some knowledge for if this comes up and i

fear

> > > that

> > > > > it prob will. Again thanks for all the info.

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

> MEDICATIONS OR TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >