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Was Fiona drinking formula or was she tube fed? I didn't know kids

could drink formula after age 1. I think you may be right about the

high carb diet. I have modified my sons diet thanks to 's

advice and his bowel movements are much better. He seems to be much

happier too. I was giving him everything with fat that I could

think of. I misunderstood the nutritionist and was giving Zach

anything that had a lot of fat grams on the label. I am beginning

to learn that not all fats are created equal. Some may be better for

him to absorb and others may be better for him to avoid.

What is maltodextrine ?

Sara - mommy to Zach 18 months

> Hi ,

>

> I am far behind with my mail but pleased to see that there is

someone else

> who favors a high carb diet. Our Fiona (now 6) couldn't digest

greater

> amounts of fat for a long time (no matter how much enzymes we gave

her) and

> so we enriched her food (she lived almost completely on baby

formula) with

> maltodextrine instead of oil.

>

> We kept the high carb diet for five years, until Fiona finally

began to eat

> normal food instead of baby formula. Fiona still is a picky eater,

but it

> has gotten much better. And fortunately she gains weight with only

1,000

> calories a day.

>

> While a high-fat, high-calorie diet is appropriate for the

majority of the

> pwcf there are always excemptions from the rule.

>

> Peace

> Torsten, dad of Fiona 6wcf and Sebastian newborn wocf

> e-mail: torstenkrafft@w...

> introduction and comments on diet in cf

>

>

> > Hello all!

> > I joined the list a month or so ago and mostly have been

lurking. The

> recent discussions about weight gain have interested me.

> >

> > Our story is that at about 2 months old our son Henry was

diagnosed with

> reflux. He ate every hour, for half an hour. at 2 months he was

eating over

> 30 oz. of formula a day and by 4 months, well over 40. We were

going through

> super sized similac every other day at that point and were at

300.00 mo. for

> formula. At four months due to what the doctor saw as reflux only,

we were

> told to add 1 TBLS. of rice cereal per 2 oz. of formula. After

gaining a

> little over a pound a month, he gained a pound in a week, reaching

the 10th

> percentile and in less than a month jumped to the 25th percentile

(for

> weight). He was not yet diagnosed, this shift to a high

carbohydrate diet

> allowed him to " catch up " , and delayed his diagnosis. I am leaving

out a lot

> of details, he was diagnosed at 5.5 months.

> >

> > I am telling this story to introduce us, but to also mention

that a high

> carbohydrate diet may help some kids with weight gain problems.

Right after

> beginning enzymes, Henry stalled in gaining weight starting at 9

months for

> about 6 months. He started gaining again after pushing a lot of

juice and

> fruit and concentrating his formula. As far as high fat foods, he

runs into

> a lot of problems with french fries. They largely seem to pass

through

> undigested and the amount of enzymes we give for a meal 4-5

ultrase regular,

> don't seem to be enough (we were warned by some doctors not to go

too much

> higher). We suspect that french fries have lead to some intestinal

> obstruction (dios) so we are currently avoiding them. We are

giving him the

> veggie sticks snack food that they sell in the natural food

section, he

> seems to like them as well and they look like fries.

> >

> > I am wondering how much research has been done in diet with cf.

Henry is

> in the 75th percentile for weight now, steadily gaining, but his

favorite

> foods are fresh fruit, wheat toast and bagels. We give him VRUIT

to make up

> for the avoidance of vegetables. He does eat cheese and drinks

milk, but not

> tons of fat otherwise.

> >

> > I will end here and welcome any comments or feedback.

> >

> > Robbins

> > mom of Henry 19.5 months with cf

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Hi,

Nope, Fiona wasn't tube fed. And of course can kids drink formula when they

are older. It is a well balanced and easy to digest food. Our clinic knew

that Fiona would not eat normal food and we have an extended blood test once

a year to make sure she doesn't suffer from malabsorption.

Maltodextrin is an easy to digest mixture of tasteless carbs. It's usually

used by bodybuilders and long-distance cyclists. I think that Polycose is

something similar but haven't compared the ingredients.

Peace

Torsten, dad of Fiona 6wcf and Sebastian newborn wocf

e-mail: torstenkrafft@...

Hi Carb Diet

> Was Fiona drinking formula or was she tube fed? I didn't know kids

> could drink formula after age 1. I think you may be right about the

> high carb diet. I have modified my sons diet thanks to 's

> advice and his bowel movements are much better. He seems to be much

> happier too. I was giving him everything with fat that I could

> think of. I misunderstood the nutritionist and was giving Zach

> anything that had a lot of fat grams on the label. I am beginning

> to learn that not all fats are created equal. Some may be better for

> him to absorb and others may be better for him to avoid.

> What is maltodextrine ?

> Sara - mommy to Zach 18 months

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