Re: Any good results with a passive helmet???

[Guest guest]

The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. From: "fryedawn" Date: Sun, 08 Mar 2009 20:10:48 -0000<Plagiocephaly >Subject: Any good results with a passive helmet??? My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

[Guest guest]

If the Boston Band is passive, than it is not like the STARBand, which is

definitely an active band. Orthomerica does make one or two passive bands I

believe, in their STARLight line, but the STARBand where the foams is shaved out

is an active band.

Jake-2.5 (DOCBand Grad 9/08)

Jordan-5

>

> The Boston band from nopco is actually passive and is supposed to be like the

STARband. That is what my orthotist said. It looks like a football/motorcycle

type of helmet. I think we are seeing good results with the plagio but I'm still

not convinced that the forhead can't be fixed.

> Any good results with a passive helmet???

>

>

> My daughter got her passive helmet last Wednesday and is doing well with it.

I know that active helmets are 100% a better choice however it was not an option

in my area (St. Louis). I paid cash for it and it was only $1500 cash! That

sounds like a great deal compared to what I've seen on here. The othonics place

(O & P) is well known it my area and seem to not have any negative feedback here.

I was surprised that it was a passive helmet because I don't remember that ever

being talked about on here. Does any one have positive expeirences with passive

helmets? I have also just posted pictures of my little one ( Rose), the

picture does not show how mis-aligned her ears are though. Thanks! Dawn

>

[Guest guest]

Starband is active. I think starlight is also active - but adjusted by heating

and reshaping, rather than removing foam. The clarren helmet by orthomerica is

passive.

-christine

sydney, 3 yrs, starband grad

> >

> > The Boston band from nopco is actually passive and is supposed to be like

the STARband. That is what my orthotist said. It looks like a

football/motorcycle type of helmet. I think we are seeing good results with the

plagio but I'm still not convinced that the forhead can't be fixed.

> > Any good results with a passive helmet???

> >

> >

> > My daughter got her passive helmet last Wednesday and is doing well with it.

I know that active helmets are 100% a better choice however it was not an option

in my area (St. Louis). I paid cash for it and it was only $1500 cash! That

sounds like a great deal compared to what I've seen on here. The othonics place

(O & P) is well known it my area and seem to not have any negative feedback here.

I was surprised that it was a passive helmet because I don't remember that ever

being talked about on here. Does any one have positive expeirences with passive

helmets? I have also just posted pictures of my little one ( Rose), the

picture does not show how mis-aligned her ears are though. Thanks! Dawn

> >

>

[Guest guest]

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow. As I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and forward growth of the other side.

From: <nwilkens2275@...>Plagiocephaly Sent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band. Jake-2.5 (DOCBand Grad 9/08)Jordan-5>> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. > Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks!

Dawn>

[Guest guest]

Our first try with a hanger band that ortho said it was the exact same as a starband and that it was more passive that even though some is shaved out the head is supposed to grow to the shape. If that's true I don't know cause she had little experience. What I know from CT and the pics and stuff they took with my son in his old hanger band was it wasn't holding any high areas. It was just sitting on his head like a jello mold and basically he was expected to fill it out. His doc band is snug and holds the areas that are high. I think the type of helmet and its success is first and foremost the experience of the ortho, and whether they have plagio or brachy. Sent via BlackBerry from T-MobileFrom: anadashmaria@...Date: Mon, 9 Mar 2009 11:56:04 +0000<Plagiocephaly >Subject: Re: Any good results with a passive helmet??? The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. From: "fryedawn" Date: Sun, 08 Mar 2009 20:10:48 -0000<Plagiocephaly >Subject: Any good results with a passive helmet??? My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

[Guest guest]

The STARband is an active band, not passive like the Boston

band.

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of anadashmaria@...

Sent: 9 March 2009 04:56

Plagiocephaly

Subject: Re: Any good results with a passive helmet???

The Boston band from nopco is actually passive and is

supposed to be like the STARband. That is what my orthotist said. It looks like

a football/motorcycle type of helmet. I think we are seeing good results with

the plagio but I'm still not convinced that the forhead can't be fixed.

From: " fryedawn "

Date: Sun, 08 Mar 2009 20:10:48 -0000

<Plagiocephaly >

Subject: Any good results with a passive helmet???

My daughter got her passive helmet last

Wednesday and is doing well with it. I know that active helmets are 100% a

better choice however it was not an option in my area (St. Louis). I paid cash

for it and it was only $1500 cash! That sounds like a great deal compared to

what I've seen on here. The othonics place (O & P) is well known it my area

and seem to not have any negative feedback here. I was surprised that it was a

passive helmet because I don't remember that ever being talked about on here.

Does any one have positive expeirences with passive helmets? I have also just

posted pictures of my little one ( Rose), the picture does not show how

mis-aligned her ears are though. Thanks! Dawn

[Guest guest]

That's what I hear I was stating what my lovely ortho at hanger said. But ours definately seemed to be just a mold since it was way too bigSent via BlackBerry from T-MobileFrom: "Foley, Molly" Date: Mon, 9 Mar 2009 09:11:43 -0700<Plagiocephaly >Subject: RE: Any good results with a passive helmet??? The STARband is an active band, not passive like the Boston band. From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of anadashmariagmailSent: 9 March 2009 04:56Plagiocephaly Subject: Re: Any good results with a passive helmet??? The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. From: " fryedawn " Date: Sun, 08 Mar 2009 20:10:48 -0000<Plagiocephaly >Subject: Any good results with a passive helmet??? My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

[Guest guest]

We got our numbers and Elaine's plago is now 0.  As bad as she was I NEVER expected to get her to 0, just close to it.  Needless to say I'm SO excited about it right now!  She still has a bit to go brachey wise (~91%).  Ortho expects her to be in it about another month.  We'll know for sure as her tort and plagio status will be evaluated by her surgeon this Friday.

 

Elaine (twin A), plagio & tort, 9 1/2 mos, 2nd band since 1/5/09

On Mon, Mar 9, 2009 at 11:42 AM, ZK <mezhyldyz@...> wrote:

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow.  As  I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. 

 As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and  forward growth of the other side.

From: <nwilkens2275@...>Plagiocephaly

Sent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band.

Jake-2.5 (DOCBand Grad 9/08)Jordan-5>

> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed.

> Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

>

[Guest guest]

Congrats on the plagio!

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa.wordpress.com/

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow. As I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and forward growth of the other side.

From: <nwilkens2275>PlagiocephalySent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band. Jake-2.5 (DOCBand Grad 9/08)Jordan-5>> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. > Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn>

[Guest guest]

Speak of the devil!  Thank you!

 

Elaine (twin A), plagio & tort, 9 1/2 mos, 2nd band since 1/5/09

On Mon, Mar 9, 2009 at 1:05 PM, L R <leilarem@...> wrote:

Congrats on the plagio!

 

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa.wordpress.com/

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow.  As  I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. 

 As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and  forward growth of the other side.

From: <nwilkens2275>Plagiocephaly

Sent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band.

Jake-2.5 (DOCBand Grad 9/08)Jordan-5>

> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed.

> Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

>

[Guest guest]

:-) By the way, what were Elaine's start plagio and brachy numbers?

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa.wordpress.com/ --- On Mon, 3/9/09, Lina Gabriev <lina.gabriev@...> wrote:

From: Lina Gabriev <lina.gabriev@...>Subject: Re: Any good results with a passive helmet???Plagiocephaly Date: Monday, March 9, 2009, 1:08 PM

Speak of the devil! Thank you!

Elaine (twin A), plagio & tort, 9 1/2 mos, 2nd band since 1/5/09

On Mon, Mar 9, 2009 at 1:05 PM, L R <leilarem (DOT) com> wrote:

Congrats on the plagio!

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa. wordpress. com/

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow. As I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and forward growth of the other side.

From: <nwilkens2275>PlagiocephalySent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band. Jake-2.5 (DOCBand Grad 9/08)Jordan-5>> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed. > Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn>

[Guest guest]

I need the paperwork to know for sure.  I also want her head shot pics.  I'm not sure what her brachey started at, but her plagio was ~19mm at the  worst measurement and got visibly worse between casting and the time she got her helmet.  Plagio was always the concern and we never talked about it to the point I wasn't really aware of it until recently when her plagio improved enough I could tell she visually there was brachey involved. 

 

Unfortunately the girls have a cold (full blown RSV with the coughing and snotting) this week so we had to reschedule her surgical consult.  Elaine is getting worse while her sister is on the mend.  Earliest we could get in is three weeks, which makes me less than happy, but it won't hurt much of anything either.  She's fine to stay in her helmet at least that much longer growth wise.  So we won't get all the nitty gritty details like I was hoping this week. 

 

Elaine (twinA) plagio & tort, 9 1/2 mos, 2nd helmet since 1/5/09

On Mon, Mar 9, 2009 at 3:49 PM, L R <leilarem@...> wrote:

:-)  By the way, what were Elaine's start plagio and brachy numbers?

 

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa.wordpress.com/ --- On Mon, 3/9/09, Lina Gabriev <lina.gabriev@...> wrote:

From: Lina Gabriev <lina.gabriev@...>Subject: Re: Any good results with a passive helmet???Plagiocephaly

Date: Monday, March 9, 2009, 1:08 PM

Speak of the devil!  Thank you!

 

Elaine (twin A), plagio & tort, 9 1/2 mos, 2nd band since 1/5/09

On Mon, Mar 9, 2009 at 1:05 PM, L R <leilarem (DOT) com> wrote:

Congrats on the plagio!

 

Leila

Maysa, 13.5 months old, week 6 in DOC band 2

http://mymaysa. wordpress. com/

We are being fitted with a passive helmet from Danmar. Our ortotist told that it is a passive helmet, but there is a gentle pressure on prominent ares of the head or one can think of it as a tight fitting on protruding parts and roomy where you want it to grow.  As  I understood it wouldn't be loose, but it wouldn't apply active pressure as a DOC-band does. 

 As for the forhead bossing we were told it would correct it. My understanding is that it would be result of regression of the affected side and  forward growth of the other side.

From: <nwilkens2275>Plagiocephaly

Sent: Monday, March 9, 2009 11:02:28 AMSubject: Re: Any good results with a passive helmet???

If the Boston Band is passive, than it is not like the STARBand, which is definitely an active band. Orthomerica does make one or two passive bands I believe, in their STARLight line, but the STARBand where the foams is shaved out is an active band.

Jake-2.5 (DOCBand Grad 9/08)Jordan-5>

> The Boston band from nopco is actually passive and is supposed to be like the STARband. That is what my orthotist said. It looks like a football/motorcycle type of helmet. I think we are seeing good results with the plagio but I'm still not convinced that the forhead can't be fixed.

> Any good results with a passive helmet???> > > My daughter got her passive helmet last Wednesday and is doing well with it. I know that active helmets are 100% a better choice however it was not an option in my area (St. Louis). I paid cash for it and it was only $1500 cash! That sounds like a great deal compared to what I've seen on here. The othonics place (O & P) is well known it my area and seem to not have any negative feedback here. I was surprised that it was a passive helmet because I don't remember that ever being talked about on here. Does any one have positive expeirences with passive helmets? I have also just posted pictures of my little one ( Rose), the picture does not show how mis-aligned her ears are though. Thanks! Dawn

>