Re: Abby's Bronch/Gene Therapy Trial

July 15, 2003

In a message dated 7/15/2003 7:53:05 PM Central Daylight Time,

reamsfarm@... writes:

> Joe

I am so glad to hear everything went well for Abby with her bronch!!

's bronch went well also the only thing I think that was the worst thing

for

her was putting in the IV. She really really hates that!!. They told us she had

some mucus more in her lung area then her airway they also said it looked red

in some areas (I hope that doesn't mean anything bad) but like you we are

waiting for Friday to get hear the results. Our doctor was talking to us about a

new powdered Tobi which would be like an inhaler which would be a lot easier

for us he said we might be a good candidate for it if they do a study here. I

hope so!!

Were you able to stay in the room when they did Abby's bronch? We were and it

really scared me how much she was coughing but they said when they put the

scope down her throat it is in a really sensitive area that make them cough. It

was really neat to watch it on the TV screen!! It is amazing how they do

thing!!! doesn't remember a whole lot about the actual scope going down

her throat but she hated the nebulizer stuff they used to numb her throat I

though she was going to get sick. Thank God she didn't have any food in her

tummy

or I think she would have. OK now that I have grossed you out I am going to go

but I just wanted to let you know all went well in Iowa too. Cya Deb A

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