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Hello again, ,

I'm sorry you are experiencing such bad emotions about all this.

It's awkward that you reacted badly to the enzymes. Can I just say

that I take Creon and for several weeks when they were first

prescribed, I had DREADFUL abdominal cramps. I had just been given a

definite diagnosis for the first time and I really thought the

disease itself had taken a turn for the worse. Then the cramps

stopped. The Creon does control the steatorrhoea very well indeed

and I have put on weight. Obviously, I didn't have such a bad

reaction as you did...I didn't have to go to hospital....but I'm

just saying that I know that some patients do react badly at first

to the enzymes. Anyway, your docs are obviously the best judges on

that matter.

Don't despair, . One thing I've learned in 52 years

(yes....52!) of chronic pancreatitis, is that the disease goes

through different stages, some much worse than others. I had

terrible attacks and bad weight loss in the 1980's (no diagnosis,

though!) but the 1990's were a lot better. Your situation could

improve, honestly. I hope your appointment goes well.

Blessings and best wishes,

Fliss

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