Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Liz, I don't know if this will make you feel better (I hope it does). I meet a lady back home in Chicago, she is the head of " Labs " at U.I.C and she has been on Methotrexate for over 15 years for severe RA. She is fine on it and just is very thankful it works for her and happy she is off Prednisone. Maybe that can happen with you? I know she does not have RP, but I was shocked to hear she had no long term effects from the Metho and that she can work on it. I hope your knee feels better soon! I for one hated those shoots I would get them in the hip and shoulder. Feel better Love, K > Hi, everyone. When I was at the rheumy's yesterday, I > asked him what he thought about the antibiotic > protocol. He explained very carefully the various > actions Biaxin has, and why it may be useful in > autoimmune conditions. I followed the explanations > while he was making them but I am afraid I can't > reproduce them. > > But he said in general he would rather stick with > more tried and tested treatments. I explained that I > am just interested in finding out what is around for > when I eventually have to come off methotrexate. > Although when I was first on metho I was told I would > probably not be on it for more than one year; but now > I have been on it for three years with no ill effects > he says there is no reason why I shouldn't stay on it > at the moment. It has a lower incidence of long term > problems than some of the other meds. The combination > of metho, plaquenil and 5mg pred seems to be working > pretty well for me. I am OK with 5mg of pred. > > I do all the things you must do, like bone density, > regular eye exams, regular blood tests esp liver > functions. I can't complain - I know I function > better than a lot of younger " healthier " people - LOL. > > The only thing I can't get on top of is getting tired > sometimes!!!! But I don't think I am alone in that!! > > BTW I had the second shot in the knees - it hurt > slightly more than last time - may be the " space " is > getting filled up!! But so far, so good. > > Love to all, Liz > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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