Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 I wanted to apologize for saying plagio is cosmetic. I actally hadn't thought of all the complications mentioned and I became sort of horrified when I read the response. Its probably due to the fact that my son is mild and all of the doctors are brushing it off and saying it will fix itself. No one even mentioned tort when I told my pediatrician at 3 months that my son has a preference for one side. She just said put toys on the opposite side. Sometimes if they're nonchallant you may not take the suggestin seriously. I can't say he has tort now but I really don't know. Also the reason I am obsessed with comparing it to braces is that I am peremptively defensive (not on this group but in my personal life) because of the reactions I received. Another person burst out laughing at the helmet and then quickly covered it up. It makes me want to slap them. If anything this makes me more aware of other people and how to be way more sensitive and empathetic. On the other hand tho we went out for sushi yesterday to celebrate international womans day and no one said anything about the helmet. That's progress! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 No apologies necessary. Unfortunately, to those who have not yet educated themselves on the subject, parents with children in a cranial band seem like they are either overprotective or extremely vain. The fact is, if left untreated, plagiocephaly can cause a host of issues down the road, like TMJ and chronic sinus problems. And let's face it, is a parent really being vain just because they don't want their child ridiculed later in life for having a flat head? My wife and I did not take our son out in public for a long time when he first started his treatment because we were afraid of the stigma that accompanies it, but then I realized that we were just being silly. Instead of being afraid of all the stares, I decided to use it as an opportunity to educate others. Each person I spoke to seemed to have the same reaction when they realized what it was all about. It was like a moment of clarity for them. Some would apologize and others would sheepishly say, " Oh, " and walk away. The important thing is to understand that, regardless of what others may think, you are doing the right thing for your child. Our son no longer has to wear his helmet, and while it seemed like an eternity when he was wearing it, now that he has graduated it seemed like it was over in the blink of an eye. I would do it all over again without hesitation. One last thing before I sign off. Don't underestimate the power of support. While there are a lot of people out there who don't understand what you're doing, there is a growing number of people who do. Eventually, you will notice that people will stop you to tell you about their child or their friend's child who wore one. It is a very comforting feeling. And if things ever get really tough, this Plagio group will always be here for you. That's why I continue to read the posts here, even though I am no longer going through it myself. Take care, Steve (Father to , Star Band Graduate, Sept. 9, 2008 - Feb. 3, 2009) > > I wanted to apologize for saying plagio is cosmetic. I actally hadn't thought of all the complications mentioned and I became sort of horrified when I read the response. Its probably due to the fact that my son is mild and all of the doctors are brushing it off and saying it will fix itself. No one even mentioned tort when I told my pediatrician at 3 months that my son has a preference for one side. She just said put toys on the opposite side. Sometimes if they're nonchallant you may not take the suggestin seriously. I can't say he has tort now but I really don't know. Also the reason I am obsessed with comparing it to braces is that I am peremptively defensive (not on this group but in my personal life) because of the reactions I received. Another person burst out laughing at the helmet and then quickly covered it up. It makes me want to slap them. If anything this makes me more aware of other people and how to be way more sensitive and empathetic. On the other hand tho we went out for sushi yesterday to celebrate international womans day and no one said anything about the helmet. That's progress! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Are all of the problems related to asymmetry. I ask because I wonder about those with brachy. Is this just cosmetic? , mom to , 18.5 months 16 weeks in STARband plus CST land Re: Not so cosmetic No apologies necessary. Unfortunately, to those who have not yet educated themselves on the subject, parents with children in a cranial band seem like they are either overprotective or extremely vain. The fact is, if left untreated, plagiocephaly can cause a host of issues down the road, like TMJ and chronic sinus problems. And let's face it, is a parent really being vain just because they don't want their child ridiculed later in life for having a flat head?My wife and I did not take our son out in public for a long time when he first started his treatment because we were afraid of the stigma that accompanies it, but then I realized that we were just being silly. Instead of being afraid of all the stares, I decided to use it as an opportunity to educate others. Each person I spoke to seemed to have the same reaction when they realized what it was all about. It was like a moment of clarity for them. Some would apologize and others would sheepishly say, "Oh," and walk away. The important thing is to understand that, regardless of what others may think, you are doing the right thing for your child.Our son no longer has to wear his helmet, and while it seemed like an eternity when he was wearing it, now that he has graduated it seemed like it was over in the blink of an eye. I would do it all over again without hesitation.One last thing before I sign off. Don't underestimate the power of support. While there are a lot of people out there who don't understand what you're doing, there is a growing number of people who do. Eventually, you will notice that people will stop you to tell you about their child or their friend's child who wore one. It is a very comforting feeling. And if things ever get really tough, this Plagio group will always be here for you. That's why I continue to read the posts here, even though I am no longer going through it myself.Take care,Steve (Father to , Star Band Graduate, Sept. 9, 2008 - Feb. 3, 2009)>> I wanted to apologize for saying plagio is cosmetic. I actally hadn't thought of all the complications mentioned and I became sort of horrified when I read the response. Its probably due to the fact that my son is mild and all of the doctors are brushing it off and saying it will fix itself. No one even mentioned tort when I told my pediatrician at 3 months that my son has a preference for one side. She just said put toys on the opposite side. Sometimes if they're nonchallant you may not take the suggestin seriously. I can't say he has tort now but I really don't know. Also the reason I am obsessed with comparing it to braces is that I am peremptively defensive (not on this group but in my personal life) because of the reactions I received. Another person burst out laughing at the helmet and then quickly covered it up. It makes me want to slap them. If anything this makes me more aware of other people and how to be way more sensitive and empathetic. On the other hand tho we went out for sushi yesterday to celebrate international womans day and no one said anything about the helmet. That's progress!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 > > > > I wanted to apologize for saying plagio is cosmetic. I actally hadn't thought of all the complications mentioned and I became sort of horrified when I read the response. Its probably due to the fact that my son is mild and all of the doctors are brushing it off and saying it will fix itself. No one even mentioned tort when I told my pediatrician at 3 months that my son has a preference for one side. She just said put toys on the opposite side. Sometimes if they're nonchallant you may not take the suggestin seriously. I can't say he has tort now but I really don't know. Also the reason I am obsessed with comparing it to braces is that I am peremptively defensive (not on this group but in my personal life) because of the reactions I received. Another person burst out laughing at the helmet and then quickly covered it up. It makes me want to slap them. If anything this makes me more aware of other people and how to be way more sensitive and empathetic. On the other hand tho we went out for sushi yesterday to celebrate international womans day and no one said anything about the helmet. That's progress! > > > How did you handle the constant questioning? My fiance gets so mad when people ask that he want to cuss them out, but I politely explain his condition so that more people are aware of the situation. If pediatricians don't know much then the public doesn't either, I understand that, but they make it seem like he has a disability. We're going to make him a onesie or shirt that says " It's called pagiocephaly, look it up! " I am even tempted to print out cards with the information and just hand them over with out saying a word to get my point across. Any suggestions? Thanks in advance!! Zayden's Mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Cafepress has some Plagio shirts, etc. http://shop.cafepress.com/plagio Jen and Luli - 3 years old Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ Re: Not so cosmetic > > > > I wanted to apologize for saying plagio is cosmetic. I actally hadn't thought of all the complications mentioned and I became sort of horrified when I read the response. Its probably due to the fact that my son is mild and all of the doctors are brushing it off and saying it will fix itself. No one even mentioned tort when I told my pediatrician at 3 months that my son has a preference for one side. She just said put toys on the opposite side. Sometimes if they're nonchallant you may not take the suggestin seriously. I can't say he has tort now but I really don't know. Also the reason I am obsessed with comparing it to braces is that I am peremptively defensive (not on this group but in my personal life) because of the reactions I received. Another person burst out laughing at the helmet and then quickly covered it up. It makes me want to slap them. If anything this makes me more aware of other people and how to be way more sensitive and empathetic. On the other hand tho we went out for sushi yesterday to celebrate international womans day and no one said anything about the helmet. That's progress! > > > How did you handle the constant questioning? My fiance gets so mad when people ask that he want to cuss them out, but I politely explain his condition so that more people are aware of the situation. If pediatricians don't know much then the public doesn't either, I understand that, but they make it seem like he has a disability. We're going to make him a onesie or shirt that says "It's called pagiocephaly, look it up!" I am even tempted to print out cards with the information and just hand them over with out saying a word to get my point across. Any suggestions? Thanks in advance!! Zayden's Mommy Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
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