Heidi

[Guest guest]

How are the new pain meds going. I hope you are adjusting easily to

the change. You may need 10mg for breakthrough or more. Once you

are confortable it is easier to stay that way. You wont need as

much meds in the long run.

The soreness of the peg is getting more bearable. loosened it

a bit as well, that helped. Well his visit was really odd, Billy

went with me and all the way to the exam room, which he has never

done. had a very non-chalant attitude about the surgery.

Sounding more like " if thats what you want go for it " , than what

would be the best treatment of my condition. I must admit I feel a

bit put back by his apathy.

He did send me to see the person who is getting subjects for that

big study by Whitcomb in Pittsburg. I think they said it was a

world wide study. I will get no info for myself from this study.

It is strickly at the molecular level. So my blood is in the pool.

gave me the number of the Dr. s' secretary and I spoke

with her this afternoon. We spoke for some time and she will send

me some stuff and ' secretary is going to send them some stuff;

and they'll check the insurance. I may fly out in the next few

weeks for a visit. It is really expensive,$300 roundtrip, so I will

have to see how I can work that out.

I hope the pain meds are helping more, the peg is better since he

loosened it. Take care,

Chrissy

[Guest guest]

The study that we participated in just the one time blood draw and

the questionairre. You may want to ask your doc which of Whitcombs

study had he considered you participating in. I cant imagine that

you should go to Pittsburg for blood drawal for the same study. It

is with the World Pancreatic Assoc or something like that.

I dont know why acted as he did. Maybe he was put back

because Billy was there. I am not sleeping well either. Waking up

with pain, but the peg has eased a lot since he loosened it. I

thought the night sweats had been worked out for you Heidi, Im sorry

to hear otherwise. I have had that a time for two and it is very

unpleasant and difficult to fall back asleep. I'm sure your

physicians have looked at all the possible causes, hormones, TB so

on. You would lthink they could find something. I know I read a

long time ago about a teenage boy who sweated profusesly, to the

point of dangerous dehydration. I cant recall what the condition

was called but they treated it medically. I'll try to remember.

How are the wedding plans coming? Have you given much thought to

hiring a planner? Angel Flight sounds great, but I dont know how to

contact it. Maybe I will just through it to a google search. Can I

say that on yahooo....*S*

Chrissy

[Guest guest]

That is so odd that we should have left elbow pain. I wonder why,

very odd. I cant tell you how to handle breakthrough pain as I am

not on any patch. I think they are opiate based and thats my

allergy and why it was never suggested. However, I do have more

pain in the afternoon. Just simple day to day tasks wears me out.

I try to do the most difficult, which aint much these days, and the

things I need my full mental capacity in the mornings and hold off

on my pain meds and until the kids get home. Lately I have been

taking the dem pretty much around the clock. That pm groups sounds

so perfect for you and they appear to truly understand chronic pain.

Did I read correctly that you were denied ssi. I cant believe

that. I hope that you dont give up on that and reapply. That is

just plain stupid. Also why could't you have a tp with an insulin

pump placement. I really dont know that much about diabetes,

surprising for a RN. Particularily brittle diabetes. I should

learn more about that consdiering the ineventable. I sure Mark has

bookoo on 5plus5. He's great.

I was ready your post to Louie about your life not being as you

pictured it should be at this point in your life. I can understand

and empathise entirely. I still have my children at home and am a

bit younger then ya'll. This is the decade I had planed to focus on

my career, well that aint gonna happen. I have been feeling rather

depressed lately. I can feel my body worsening and fear where this

might be heading. I think it is normal to run the gambit of

emotions with this condition. I have been thinking that I need to

see my lawyer and discuss the particulars of my will. I try not to

linger on those thoughts too much, but I cant deny the

possiblities. I really need to get the courage to see him

straighten out things. Maybe getting that out of the way will lift

my depression.

Take care Heidi,

Chrissy