1st Visit to CF Clinic on Tuesday

[Guest guest]

We will be consulting with a pulmonologist at the CF Clinic in

Chapel Hill this coming Tuesday. They tell me to expect another

sweat test to be performed (the 1st 2, performed locally, were

negative) I'm hesitant because the tests have been very painful for

my daughter to endure. They told me that they shouldn't hurt.

Question #1: What are your experiences with sweat tests?

Question #2, for those who have tread this path before me:

What questions do you wish you would have asked on your 1st CF

Center visit?

This will be a 2 1/2 to 3 hour trip one way. I want to be prepared

as much as possible for this initial visit.

I thank you in advance for your replies.

All my best,

Polly

Mom to " nearly 9yo " in diagnostic limbo (one mutation identified, 2

negative sweats and achromobacter in lungs requiring IV antibiotics)