Guest guest Posted September 11, 2003 Report Share Posted September 11, 2003 Hello all! Here it is on the 11th. Rosemary I am thinking of you. A good friend of ours had a baby on Tues. (the actual day that was 9/11) and they named him after their brother who was killed at the WTC. His and the baby's name is Novotny. It was very hard to see 's nephews get up and read names of other victims from the list and end it with and our Uncle !!! Not an easy day! Well, it has not been an easy week. Moe was in Columbia last week for a CT scan only to show that the Crohn's is acting up again and she lost 5 more pounds. She is now 93lbs 5 ft 3 and 13 years old. She was put back on prednisone for 45 days! I hate steroids!!!! Jack is doing very well. We've got him potty trained. He is speaking a little french and he wont be 3 until Oct. He will start preschool the beginning of Oct. Kate, wocf, has strep for the 6th time in a year. We will be visiting the ENT when we return from our trip. Our Trip: On Sunday, God willing, at 5:10 pm EST we will be on our way to France. The Knights of Columbus, a Catholic organization, will be paying for Moe, Jack, Me and . The AOH, another Catholic organization, held a raffle to pay for Kate. We are going for a total of 10 days. This is a pilgrimage to Lourdes. For those of you who are not familiar with the background....Lourdes is a town in France where The Virgin appeared to St. Bernadette when she was young. A spring formed and the water from the spring is holy. Now I am a realist. I don't expect to go with my children and have them come home CF and Crohn's free. As we al know we don't always get what we pray for otherwise we would have all won the lottery by now. What I am looking for is even harder than the children being " cured " . I am looking for my husband to get it! I want him to move out of his shack by the river Nile and come back to the real world. That's all I want. HONEST! I can deal with the rest just give me some HELP! I will kneel down at the grotto and say a special pray for all of us to be granted this. I just wanted you all to know about it and keep us in your thoughts and prayers for our LOOOOOONG journey. Meg Mom of 3 Moe 13yowcf & Crohns, Kate 8yowocf, Jack almost 3 wcf & gerd Quote Link to comment Share on other sites More sharing options...
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