Re : Need support - again.

January 11, 2004

Hi,

I just want to re-echo what has been said about asking for more

tests. It is somtimes very difficult to detect some forms of CP,

especially in the early stages. I was going through possibly my very

worst time in a lifetime as a CP sufferer (undiagnosed until last

May)in 1986-88. In 1988 I had a CT scan and ERCP. They were

inconclusive. It was only in April 2003 that another CT scan finally

showed the extensive calcifications and atrophy which had developed

since.

I am NOT, NOT trying to indicate that you may have CP. I am NOT a

doctor and have no medical qualifications whatsoever. You always

have to go by what the docs say. However, it's definitely worth

pressing for more tests. It is also my personal view (just my

opinion) that it's worth seeking out an experienced pancreatologist

noy just a gastroenterologist. My present gastro is excellent ....I

have the highest respect for him and he has been enormously

supportive.....but CP is a rare condition and

the pancreatologist, obviously, has more experience in the disease

than someone who deals with all digestive diseases. (Actually, I

think you may have said you do see a pancreatologist? If so, and

I've forgotten, I'm sorry! As I've said before, I probably need

help with my brain function as much as my pancreatic function!!) I

know it isn't always easy to find a pancreatologist. I happen to be

lucky (lucky....with CP???!!!) in having a very good pancreatic team

at my local hospital but many patients come here from elsewhere in

the country and find it well worthwhile.

Anyway, good luck with your docs and I DO hope they are right and

you do not have pancreatitis....obviously!

Best wishes,

Fliss

Recommended Posts