new to group, from Reading, Pa

[Guest guest]

I have a six year old daughter who was diagnosed with cf at one

month of age. I'm new to this board and was interested in what

other parents are dealing with on a daily basis. I myself have been

dealing with anxiety and depression since my daughter turned one

year old. This disease has it's ups and downs, and I think that

after six years of dealing with this, Ive come to realize that

talking about things is therapy for me. So that's why I'm here. To

receive support and to help others who may be going through some of

the same things. My daughter's daily routine includes the

following: Therapy 2x's a day - Zopenex

Pulmozyme

(she has the vest) TOBI (every other month)

Actigal

ADEK

Advair

Rhinocort

Pancrecarb (she just started swallowing her enzymes!!!)

Clarinex

Miralax

She has been hospitalized 6 times. At birth for meconium illius

surgery. At ten months for psudomonus (iv's), 3 years for staph and

psudomonus infection, 4 years old she had a mucus plug in her

intestines and blocked her whole digestive system where she needed

a " draino " type medicine to unplug her system. 5 years old for

psudomonus and staph and just this past March for the same two

bacteria.

This is her basic history, just to give you some backround. If

anyone out there would like to chat, let me know! My prayers are

with all of you and your families.