Re: New here, currently living in limbo land with my 5 year old. ...

July 21, 2003

In a message dated 7/21/2003 3:19:24 AM Central Daylight Time,

liba@... writes:

> Liba

Your girls are adorable. I have three daughters and two of them have CF. My

oldest was 6 years old before they were diagnosed and my youngest was 1. We

also had know history of CF until I finally found a relative on my Grandmothers

side we still have not found any one on my husband side. But looking back at

his families history there were people who died of whooping cough and asthma so

I really think there was CF there but know one was ever diagnosed with it.

There are a lot of people on her who have had to do the ambery test to get the

correct diagnoses so don't give up!! I know know one wants there child to have

CF but there is lots of new treatments out there and the sooner they are

diagnosed the better it is for there health. You are always welcome here and

there

is a lot of neat people on here even if you girls don't have CF you are always

welcome it would be one more person that would be aware of CF. Deb A

July 21, 2003

My daughter had a negative test at 9 mos and a negative test at 6!! It

wasn't confirmed until the blood test was done.

She was sympmatic since birth. As horrible as the diagnosis is - we found it

a blessing cause they were finally treated medically!

Good Luck.....

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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