Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Okay, let me introduce myself. My name is Remington. We live in Broken Arrow, OK. I have been married to my great husband, Danny, 20 yrs. now We have 3 kids. Danny Ray w/o CF is 19 yrs. and plans to go to Bible School this fall. Miranda w/o CF is 15 yrs. She plays the flute and will be a sophomore in high school. Now, Savannah w/ CF is 10 yrs. She is a fighter for sure. She had 4 sweat test that came back negative. Finally a DNA test was ordered and shower 1 classified mutation and 1 non classified. Savannah had enough clinical symptoms that CF was diagnosed at 2 1/2 yrs. She has been in the hospital 36 times. Has had her port-a-cath replaced 4 times. She has worn out the others by being accessed a lot. She has had sinus surgery and continues having sinus problems. It would take a while to list all her meds, so I'll skip that part. She also continues to struggle w/ her weight. Savannah sees the doctor every 3 weeks now. Savannah has chronic inflammation that keeps her down Also MRSA. She hasn't been able to go to school to much but goes as much as she can talk the doctor into letting her. Most of the time 4 hrs. is about her limit. Well, that's my intro. I look forward to getting to know everyone. Feel free to contact me at any time. Take Care- Remington Quote Link to comment Share on other sites More sharing options...
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