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Okay, let me introduce myself.

My name is Remington. We live in Broken Arrow, OK. I have been married

to my great husband, Danny, 20 yrs. now We have 3 kids. Danny Ray w/o CF is 19

yrs. and plans to go to Bible School this fall. Miranda w/o CF is 15 yrs. She

plays the flute and will be a sophomore in high school. Now, Savannah w/ CF

is 10 yrs. She is a fighter for sure. She had 4 sweat test that came back

negative. Finally a DNA test was ordered and shower 1 classified mutation and 1

non

classified. Savannah had enough clinical symptoms that CF was diagnosed at 2

1/2 yrs. She has been in the hospital 36 times. Has had her port-a-cath

replaced 4 times. She has worn out the others by being accessed a lot. She has

had

sinus surgery and continues having sinus problems. It would take a while to

list all her meds, so I'll skip that part. She also continues to struggle w/ her

weight. Savannah sees the doctor every 3 weeks now. Savannah has chronic

inflammation that keeps her down Also MRSA. She hasn't been able to go to school

to

much but goes as much as she can talk the doctor into letting her. Most of

the time 4 hrs. is about her limit.

Well, that's my intro. I look forward to getting to know everyone. Feel free

to contact me at any time.

Take Care- Remington

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