Thanks for the warm welcome

[Guest guest]

Just wanted to take a moment to thank all of you that have welcomed

me here. I'm sure you all know how much that means to me.

One thing I have found that sorta upset me was the lateste

information about RP and symptoms. Dang it could have been written

about me. All of these years seeing doctor after doctor who did

nothing but look at me like I was nuts or a Hypochondriac made me so

angry I cried. Takes a lot to make me cry and normally the only

time is when I have been pushed to the end.

I realize that this is a rare disease, but come on...what is wrong

with this picture. I think a lot has to do with HMO's and the

quality of doctors as well as other services they allow you.

My ribcage muscles would cramp up so bad that it would take me to

the ground...I was told by my Primary doctor... " Oh that's the FM

Sharyn " ...no big deal.

I'm being treated for so many things now it's not funny. Medication

cost even with a prescription card is running close to $300 a

month. And yet I wasn't feeling any better....until now. My teeth

don't hurt anymore so I don't have to have any more pulled. Mye

ears are not draining only to be told you clean your ears to much

Sharyn.

This is crazy...I'm sure what I am saying isn't new to any of you,

but it just burns me that I have had to be in this pain for so

long...I've been in pain so long that I have conditioned myself to

tone it down and not have it get to me. Even with my hip being bone

on bone...I don't feel it. I'm a very calm person when it comes to

pain.

I'm doing much better since being put on the medication. I still

have waves of fevers or hot flashes...(no it's not the menapause

kind..started that point in my live when I was 34 and was completely

finished with menapause by 41...doctors said that was normal...what

do you think?)...I feel like I have a 104 temp...but it passes

quickly. I still get a little sick to my stomach...but that's okay

too.

My biggest problem is the diabetes...even with the double dose of

medication I still cannot get it below 260...which is more than

doubled since going on the presidone. Have a call into my doctor

about that one.

I plan on living the best life I can...have worked very hard and

have hidden a lot of my health issues and pains. Not going to do

that anymore.

Question: How does stress affect you all? And how many of you are

still working or does that affect you too.

I am stil working, but it has become very difficult at times to even

get out of bed. I sorta push myself and there are a lot of things I

can no longer do and need help with.

Well, as you can see I'm long winded..sorry...I'll get better...have

so many questions..

Oh..one very important question. What are the chances that my

daughter has PR? I've very worried about that.

Again thanks to all of you...hopefully my next post I'll be able to

tell you more where I live and all the pets I have.

Hugs

Sharyn