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I'm the mom of two CF kids. 17 yr old daughter and 12 year old son. I just

found out about this group and I'm looking forward to sharing information.

My 12 yr old cultures b. cepacia and is much sicker than my daughter. She

cultures pseudomonas.....no b. cepaicia for her so far. My husband and I both

work full time....the double insurance coverage is a must. Sometimes, I'm not

sure how I can continue.....with 4-6 hospitalizations a year between the two

kids. I'm very lucky to have a wonderful understanding employer.

I'd love to hear from anyone with b. cepacia experience. We are quite concerned

about the turn it may take.

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