Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 I'm the mom of two CF kids. 17 yr old daughter and 12 year old son. I just found out about this group and I'm looking forward to sharing information. My 12 yr old cultures b. cepacia and is much sicker than my daughter. She cultures pseudomonas.....no b. cepaicia for her so far. My husband and I both work full time....the double insurance coverage is a must. Sometimes, I'm not sure how I can continue.....with 4-6 hospitalizations a year between the two kids. I'm very lucky to have a wonderful understanding employer. I'd love to hear from anyone with b. cepacia experience. We are quite concerned about the turn it may take. Quote Link to comment Share on other sites More sharing options...
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