Introduction

[Guest guest]

Hi! My name is Margaret and I'm Mum to who is 4 and has CF, as well

as a wicked sense of humour and an answer for everything!! We live with

's dad, Simon, and a cat called in Glasgow, Scotland.

was dx'd last year at the age of 3.5 despite having been trotted to

every consultant we could get access to since he was born - asthma, ENT,

allergy, etc -. We had an incredibly hard 3.5 years prior to dx so we had

mixed emotions when we discovered that he had CF. We were obviously appalled

and frightened but were amazed that within days the pale, exhausted, cranky

little boy we knew was blossoming into a bright, energetic and funny little

person - friends came to visit us in hopsital and were so surprised to see

him jumping up and down on the bed when they had hardly ever seen him run or

jump around.

We now do physio twice a day, nebuliser and inhaler twice a day,

antibiotics, vitamins, enzymes and 2-monthly IV which we do at home.

has been showing pseudomonas since dx and is now on zithromax - after a long

series of discussions with very hesitant Drs. He hates the long line

insertion and always seems to encounter problems so he will be getting a

portacath over the next few months - I will be picking your brains very soon

about ports for small people!! 's late dx has obviously taken a toll

on his body but at the moment he is happier and healthier than he has ever

been - he has sprouted up, is piling on the pounds (favourite dishes being

beefburgers and chips and pancakes, bacon and maple syrup!) and doesn't look

as though there is anything wrong with him. I am also piling on the pounds

and have about a tenth of the energy he has!

I have been a member of Cystic-l mailing list since 's dx and have

found it really helpful and made some good friends there - tho recent flames

there have prompted me to join this group. I really look forward to getting

to know you, learning more about CF and helping other CF parents if I can.

Best wishes

Margaret - Mum of 4yo wcf