Guest guest Posted August 16, 2003 Report Share Posted August 16, 2003 Our CF doc told us a different story. He said that as long as the child eats within 30 min - 1 hr of taking the enzymes that they are o-kay. They prefer that the kids eat as soon as possible after taking the enzymes. When our daughter, Piper, was in the hospital and on a continuous pump feed, she took her enzymes every three hours. One thing that we were told would help the enzymes in the digestion was to also take an acid reducer like Pepcid or Zantac. They keep the stomach acid from wearing away the enteric coating of the enzymes too quickly. Piper takes the Creon 5 enzymes, she takes 4 pills with each feed. Hope this helps Katy mom to Austin 4 no CF & Piper 13 months w/CF micheleb13827 wrote: I asked the nurse practitioner about this Tuesday as well and she said that enzymes are only good in the system for 15 minutes. So as she explained it was if you took it too early before eating they were ineffective the same as if you took them too late. I was also told needs to take 2 Ultrase no matter how small the meal or snack. But not with juice or fruit. So I guess the story changed from clinic to clinic huh? LOL Take care - Michele B ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Angie My son is not even born yet. Due in Nov. My doctor has told me know matter what signs or not I will start him on enzymes. I don't know whats right or not as I'm learning and no other family member has cf. Right now I'm trusting myself and my doctor. It's all I can do. Kristi > >Reply-To: cfparents >To: <cfparents > >Subject: Enzymes >Date: Wed, 20 Aug 2003 22:40:35 -0400 > >Just a question for anyone.... > >If a child is diagnosed with cf before, at, or shortly after birth, do they >automatically prescribe enzymes without waiting to see if the child really >needs them? JC was diagnosed at 4 months. While he was thin, he was on >the growth charts. The clinic has monitored his weight carefully, but >because he continues to gain and has " normal " stools, he seems to be >pancreatic sufficient. I realize that with most cf kids it is painfully >obvious that they need enzymes, I was just wondering if its not obvious do >most clinics wait and see or do they give enzymes automatically. Just >curious. > >Angie (Ma to JC, 3yo, wcf) > > > RE: New to the group > > > Hi Kristi, > > As almost everyone has said already, it is incredibly fortunate that you > found out before he is born. Kate was diagnosed at two months, and I > was a wreck for that time period. Things were MUCH better after > diagnosis! She grew fat and rosy and happy (finally)! I've mulled it > over a little and here's some stuff I wish I had known at the beginning. > > > 3) Enzymes will most likely be prescribed for your baby. I fed these to > Kate in applesauce, but other acidic foods work too. Anybody have > favorites other than applesauce? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Angie & Partin wrote: >... >If a child is diagnosed with cf before, at, or shortly after birth, do they automatically prescribe enzymes without waiting to see if the child really needs them? ... > In my son's case, after diagnosis by sweat tests, a fat analysis was done on the stool to determine if enzymes were needed. He was still on the growth charts but had plateaued in his weight and was not gaining any more. The stool analysis involved collecting all stool for three days and keeping track of all food intake over the same period for comparison with the amount of fat lost in the stool. Since he was breastfed, he was weighed before and after each feed as an estimate of intake. The fat analysis of the stool confirmed enzymes were needed (even though the test was compromised by a number of things done incorrectly). The 7-8 explosive, loose bowel movements per day were a convincing indicator to me. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 How do the doctors know you need enzymes ? in Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 they have to do tests...but you should know whether or not your food is being digested...not to be gross...but you can tell by your stools. Rhonda > How do the doctors know you need enzymes ? > in Ga. Quote Link to comment Share on other sites More sharing options...
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