Snow at Christmas/

[Guest guest]

Hello!

Well , I hope you are feeling a little better now and will

be able to get things done gently. I ALWAYS find that cleaning in a

frenzy doed for me....seriously! I find I have to be quite careful

about exercise. Sometimes, as a little girl, if I swam a lot after a

long lull, I would have a pancreatic attack. Of course, nobody knew

what it was and it just seemed so illogical to follow swimmimg! I

never thought that this mystery condition of my life (all the

abdominal pain over several decades) would be " solved " in this

unpleasant way. As a child I used to think I might have swallowed

something as a baby and that, one day, " they " would find it, perhaps

while X-raying me for something else, and that would be the end of

the dreadful pains. Alas...I did not think of pancreatitis even

though my mother died of the disease. Very unusually, she did not

really have a lot of abdominal pain (she had serious loss of

appetite, weight loss and anaemia). After her distal pancreatectomy

in 1958 she never recovered and died in 1965 from acute

pancreatitis. So I never put 2 and 2 together. In 1988 the gastro

did an ERCP but it was inclusive and coeliac disease was diagnosed.

So it comes about that it has taken 52 years to diagnose my

condition!

Sorry to ramble....I've probably told you all this before! Apologies

again if I have!

No CT scan results yet. I don't have an appointment arranged with

Prof but I do have one with my current gastro on 15th Dec. As it was

Prof who ordered the scan, it will probably be beyond the wit of man

to get the results to the gastro unless I intervene in plenty of

time and try to arrange it!! I want to know before Christmas.

Usually only the one who orders a test gets the results .....and

some time later, if we're lucky, the GP will also get them!! If I go

to my appointment with the gastro and then ask about the results of

a test he didn't order, it could seriously disrupt the whole

workings of the hospital and I wouldn't want to do that!! Sorry to

be sarcastic, especially as you work in a hospital....maybe yours

are more efficient than ours! Actally, EVERYONE who has had anything

to do with me at the hospital over this disease has been JUST

FANTASTIC.I have no complaints at all....except that they won't make

my decision over the TP for me! Just at the moment I feel that I

don't want this surgery. Neither do I want to live a 40% cancer risk.

Well, anyone suffering from insomnia who is reading this should be

sound asleep by now.

I think about you a lot and hope you are OK. I love your posts. I

loved Heidi's answer to your memory of the snow. It has been cold

here to-day and we bought our trees. I feel very Christmassy. Hope

you do as well.

Best wishes. Bye for now.

Love,

Fliss