Heidi, DaveandSue, Fliss, Chris

January 5, 2004

Thank you all so much for your posts. I can't tell you how touched I

was to read so many reply's. My appointment went well. I am a

little skeptical about his diagnosis---gastroparesis. I'm not sure I

buy it. The doctor spent two hours with me and reviewed all the

tests and medical reports and asked me many questions. He is one of

the top pancreas specialists in the country. His first

question: " Do you drink? " I don't know why he asked me that when

all my medical reports state I don't.

I really liked him and he was completely personable but if I do have

CP I won't find out anytime soon. This is why I am skeptical: He

said he was not concerned with my elevated amylase and that he

doesn't even look at lipase until it's 1000. I've already have

xrays, ct scans, ERCP,(all negative) and an EUS. The EUS showed my

pancreas was inflamed but he told me he can't vouch for the

experience of the person who read the EUS. If that's the case, why

not order another EUS?

I was suprised by his last comment to me. I went to the appointment

not mentioning my belief that I have CP. He said, " I know your

symptoms are a lot like CP but I don't think you have it. " He put me

on a gastroparesis drug and said he will not rule out CP---so I have

to go with that for now. I have a follow up in one month at which

time he will consider another EUS if symptoms persist. From reading

all your posts it does not appear anybody was diagnosed right away.

I don't know if I belong on this website by my instinct tells me I

do. Has anyone ever had a similar experience?

Thank you, especially HEIDI, DaveandSue, and Fliss. Your posts were

most kind and welcomed.

J.J.

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