Re: (KC)

[Guest guest]

--- wrote:

> I would hope you could get a baseline PFT done by a

> Pulmonologist if you are having shortness of breath

> and a dx of RP.

>

> Are you coughing with a dry, hacky unproductive

> couch? Is it a weird coughing sound sort of like a

> seal? Do you feel like you have a weight on your

> chest when you lay on your back? These are some of

> the first symptoms I had before my dx. After a

> couple of PFTs and lots of asthma medications which

> did nothing, I had a most revealing bronchscopy.

>

> This RP is so strange, isn't it? Most in the group

> say it's important to have a good rheumatologist. I

> just check in with mine every 3 or 4 months, but I

> see my Pulmonologist every 3 weeks and kinda

> consider him a close friend!

>

> Hope you have a great weekend.

>

> Take care,

> (KC)

Thanks for the information, . This group has

so much knowledge and experience.

I have never seen a pulmonologist, do have a dx of RP,

and do have some shortness of breath. Maybe I will

have to ask one of my doctors for a referral.

However, now with this little office test that said

normal, I doubt that I can get one.

I did have the cough that you described before I got

put on medications. I used to lie in bed at night and

my husband could hear me coughing, all the way down

the hall, and over the TV. Dry and unproductive it

was, but man I could not get rid of it. Both of us

had begun to think that I did have asthma. The cough

is better now and only occurs infrequently. Like I

said to Dagny, it is so good to have this information

for future reference.

The only other doctor I have seen for RP is my eye

doctor. I did have a lot of eye involvement, which he

got under control...thank God.

Take care, and thanks again for your information.

Love, squeek

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