Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Hi everyone, My name is , I just joined this group today so I don't know anyone. My daughter, Madeline was diagnosed with cf at 10 days old. We have been doing breathing treatments twice a day and adjusting enzymes since then. She was hospitalized once in Dec. 2002 at 10 months old for psuedomonas. She has been through 2 doctors at our clinic in Columbia, Missouri so far, they either move or retire on us. She meets her 3rd doctor tomorrow. She has a regular apt. every 3 months. She will get a deep gag swab to see if she has any infections, and we will get a chance to talk with our nutritionist and social worker. I have seen so much on herbals and supplements since I have joined a few sites this week and I was wondering if anyone could give me advice on what to ask my nutritionist about tomorrow. Madeline is currently on Creon-5 and takes 2 pills with every meal or every 3 hours while eating, she eats constantly, thank goodness. She is only 20 pounds and hasn't gained weight is 2 months. She isn't having too many stools. I just feel like I'm not very knowlegable about her diet. If anyone has any advice or a comparable story or just wants to talk I would love to hear from you. Thanks, Mother of Madeline 1 wcf Quote Link to comment Share on other sites More sharing options...
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