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My daughter, Madeline wcf

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Hi everyone, My name is , I just joined this group today so I

don't know anyone. My daughter, Madeline was diagnosed with cf at 10

days old. We have been doing breathing treatments twice a day and

adjusting enzymes since then. She was hospitalized once in Dec. 2002

at 10 months old for psuedomonas. She has been through 2 doctors at

our clinic in Columbia, Missouri so far, they either move or retire

on us. She meets her 3rd doctor tomorrow. She has a regular apt.

every 3 months. She will get a deep gag swab to see if she has any

infections, and we will get a chance to talk with our nutritionist

and social worker. I have seen so much on herbals and supplements

since I have joined a few sites this week and I was wondering if

anyone could give me advice on what to ask my nutritionist about

tomorrow. Madeline is currently on Creon-5 and takes 2 pills with

every meal or every 3 hours while eating, she eats constantly, thank

goodness. She is only 20 pounds and hasn't gained weight is 2

months. She isn't having too many stools. I just feel like I'm not

very knowlegable about her diet. If anyone has any advice or a

comparable story or just wants to talk I would love to hear from you.

Thanks,

Mother of Madeline 1 wcf

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