New to this - Need advice please help.

August 21, 2003

I want to know if this sounds like a CF child. My son Jack is

HUGE!!! He weighs 26lbs, 9 ozs and is 6 1/2 months old...so obviously

weight gain is not an issue. He was born at 37 1/2 weeks, he started

coughing shortly after birth and making excessive mucus at two weeks

old. It sort of came and went with some wheezing until 8 weeks of age

where he got progressively worse and had to go to the ER at least 3

times and on one occasion I had to call 911 because the mucus had

caused an airway obstruction and he was struggling to get air. From

about 4 weeks old he has been on Pulmicort twice a day and Albuterol

as needed (as much as every 2 hours), he has been on Prednisone 4 or

5 times. They thought it was reflux and tried Zantac and prilosec but

he doesn't have reflux, a barrium swallow confirmed that so he is off

of thoses meds. The ENT found a severe sinus infection and he was

put on antibiotics (Omnicef) for 10 days, he was still making a lot

of mucus sounds so he left him on for another 10 days and the mucus

sound went away for the first time!!!! (he was 4 months old)...after

stopping the antibiotics it came back and I insisted that they put

him back on so they put him on Augmentin for 3 weeks and the mucus,

wheezing and coughing stopped again...now he has been off of all

antibiotics for 4 weeks and the mucus, wheezing and coughing came

back....he virtually always sounds congested yet his nose is clear,

it is usually in his throat or chest. He is going for a sweat test on

MOnday....What do you think??????

I was tested when I was pregnant to see if I was a carrier and it

came out negative so how can he have it....does it sound like he has

it????? Plkease help me....

Amy

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