hello again everyone

[Guest guest]

Well after two long weeks in the hospital we are home again. Both Colgan and I

are so glad to be back.

We went in on the 12th of this month because Colgan was having a lot of

coughing spells and really congested. I kept hopeing that it would just be a

little bug but it just kept getting more ugly each day. MY clinician wanted me

to hold off and give him just one more day to show improvment so I did and well

obviously he did not.

Colgan cultured staph again. This is the second time in three months.

The first time he had 7 days of Tobramyacin and Fortaz and I really hoped that

it would have knocked it out. This time same thing 7 days of IV anti. At the

same time that we were fighting this we also started fighting him really bad

with eating. As you all know my little one is really not that interested in

eating at all anyway, but he ate a little. Now I am lucky if I get one 4 oz

bottle down him a day.

Colgan was sent home with an NG tube for a couple of weeks while we wait

for my primary to return from Hondourus (medical missions trip) He will be back

on Friday I don't think I have ever been so frusterated in my life with a Dr.

Not him but the residents at the hospital who had to watch up while he was out

of country. I really think that I new more about this disease than that stupid

idiot did about medicine at all. I really just wanted to choke him on several

occations.

Sorry totally went off on a tangent there. Colgan is doing continuous

feedings at night now and still is not gaining weight. Iam really having a time

getting his enzymes on track. One day too many then next not enough so trying

to find a happy medium. I really missed talking with you all for my evenings.

With my husband gone in Iraq I was at the hospital the entire time. We live

about 1 1/2 hours away so I am not comfortable leaving him there alone.

At our next clinic visit on the 3 of Sept. we are going to talk about

putting a micky button in ( spelling I am not sure of ) Have any of you had to

work with this before? I am worried that he will not gain weight without one but

I also do not want him to have to have another surgery. At 7 months old he has

already had to go through so much I just want to make sure that I am making the

right choice about this.

Anyways, like I said I missed hearing about all of your little angels and

I sure hope that all of them are feeling great. I know there is some stuff

going around out there right now. Ughhhhh I think I have a touch of something.

Very cautiously I wear a mask each time I think that I might be getting sick and

am coughing. If only I could make everyone do the same. I am sure you all wish

the same huh?

Well I had better get to bed I look forward to jumping back into the

conversation again. That is if I can find a starting point. It really is hard

to get grasp of what has all be going on if you leave for a while.

Lots of love to all of you

Ashauna mother of 2 Maxwel almost 5 yrs w/ocf and Colgan 7 months w/cf