To Re: new to group

[Guest guest]

--

Hi : I'm also new to all this. I can let you know that all

those tests you're having done are the same as what I've had

done in the past three months. I've had barium swallows,

ultrasound, CT scans and gastroendoscopy and nothing was

ever discovered. I'll be going for an MRCP next month-----Hoping

that something does show! Other than that, I don't know what's

next. My diagnosis for CP was made after doctors thought I had

a perforated duodenal ulcer (not) and my lipase was somewhat

elevated. A week in the hospital and the pain came back. Now

have mild constant pain----some days worse than others. I hope

we both get a proper diagnosis soon. In the meantime, I wish

you well .

This looks like the perfect support group for the both of us!

- In pancreatitis , " she_remembers " <

she_remembers@y...> wrote:

> Deanna: Thanks for the reply......I'm looking at alot of the

> messages on this site, hoping to find out more about this.

Today, I

> don't have much in the way of stomach pain, but I feel

ABSOLUTELY

> exhausted and weak. Last night, I was VERY close to going to

the er

> because of the pain, but pain meds and heating pad seemed

to help

> enough that I finally went to sleep about 1 am. Kind of

> scary....just got a call from the hospital to pre-register and they

> asked if I had to spend the night would I want a visit from my

> clergy.....geez. Well, I'm trying to be " up " about this and

maintain

> a positive attitude at least as best as I can. Can anyone tell

me

> more about (a) what possible/probble causes could be if they

don't

> find gallstones from u/s or CT (which they didn't), and ( if

> they're looking in the stomach (tomorrow's endoscopy) what

could be

> possible/probable causes? I'm really concerned because I'm

now on my

> second week out of work and of course the doctor's note I sent

in to

> my boss had a typo in it saying out of work until 2/6 (supposed

to be

> 2/16).....aaaargh.......

>

> thanks again

>

>

>

> > Dear ,

> > I know all too well that weird feeling you get. That's one of

the

> > things I'm fighting so hard to get changed. A lot of docs think

> panc

> > is caused only by alcoholism or that we're just " drug

seeking. "

> I've

> > been made to suffer so many times in the past 10 years due

to that

> > kind of thinking. I think I can safely speak for everyone here

to

> > being in that situation at one time or antoher. You have to be

a

> > true alcoholic, meaning you drink most of every day for years

for

> > alcohol to be the cause. None of us here have had drinking

> histories

> > like that. I admitted to social drinking in college, &

immedeiatly

> > was thought to be an alcoholic even though I hadn't had a

drink

> since

> > I was preganant with my first child. He's now 19 years old.

> Please,

> > don't let anyone tell you that you caused this, ok? My enzyme

> levels

> > don't even go very high anymore & some docs use that

strictly as a

> > way to diagnose panc. Not fair...you can't always go by that b/

c

> if

> > enough damage is done to the panc, it can't produce the

high enzyme

> > amounts it used to. Not that you will run into any of the same

> > things, but I just want you to go in knowing that we're fighting

a

> > stigma related to this illness. I don't want you to be

> intimidtaed.

> > Don't forget, we pay for our doc's services. They work for us.

> > I would suggest, for now, to avoid ALL alcohol. I won't even

use

> > Nyquil b/c is has a small amout of alcohol in it. That may not

be

> > what caused you panc. but once you have it, drinking really

pisses

> it

> > off (if you don't mind my language). Everyone is different &

what

> > may not work for one person might work great for another.

So as

> long

> > as you decide to stay with our group, any input you have is

greatly

> > appreciated.

> > My thoughts are with you, & my prayers go with you tomorrow.

> >

> > Hugs,

> > Deanna Tubb

> > New Mexico PAI Rep