Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Elaine, Tail bone flares are awful! You can't get comfortable in any postion you sit in. I seem to notice it only when I sit. It is the same type of pain I have when I flare anywhere else. They don't last long but they are enough to drive you crazy. If I go somewhere and have to sit on hard benches etc. I take a pillow or sit an figet.LOL I look like a little kid who can't sit still. Have you noticed that RP seems to hit the outlying area where you have injured them as a child. Yes I fell on my butt a few times, wrist, knees, etc. No I wasn't a clutz just pretty much a rough and tumble kid. Sorry I just don't know how to discribe how it feels when the tailbone flares. Heck the Doctors look at you like you are from Mars when you tell them you have RP. Makes you wonder what they think RP patients are suppose to look like. Lots of Love Glenda Hi Glenda, Tell me about your tailbone flares. I have constant pain in my tailbone and when I tell the docs they look at me like I'm from Mars! Elaine in pain ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Hi Glenda, Thanks now I know I'm not from Mars! That's exactly what happens to me. The last Rhuemy even said that the tailbone wouldn't be RP. Like I imagine this pain!!! I have problems with my tailbone daily and is the worst at the end of the metho week , the last few days berfore the next dose. I don't even dare to sit on wood chairs, I'd rather stand. I don't recall hurting my tailbone when I was a child but I was really a tom boy and very well could have. I was always up in trees and jumping out of them. With my nose, my abusive ex punched me and nearly broke it. But with my ears I don't recall hurting them. Oh my goosh I just remembered I used to roller and ice skate and the boys would always push us down. I remeber I got spun arround roller skating and fell smack on my tailbone on the concrete. I went to the hospital for it. Same with my knees I had an injury there too. Sounds like we were both pretty rough and tumble kids. How many tree forts did you build!!!! I know what you mean about the pain, it is hard to discribe. Just a constant deep dull ache, like the bone crushing. Next time we go into the docs maybe we should paint ourselves green. Maybe that can be the official RP colour!!! Thanks again, Elaine. Re: Elaine tailbone Elaine, Tail bone flares are awful! You can't get comfortable in any postion you sit in. I seem to notice it only when I sit. It is the same type of pain I have when I flare anywhere else. They don't last long but they are enough to drive you crazy. If I go somewhere and have to sit on hard benches etc. I take a pillow or sit an figet.LOL I look like a little kid who can't sit still. Have you noticed that RP seems to hit the outlying area where you have injured them as a child. Yes I fell on my butt a few times, wrist, knees, etc. No I wasn't a clutz just pretty much a rough and tumble kid. Sorry I just don't know how to discribe how it feels when the tailbone flares. Heck the Doctors look at you like you are from Mars when you tell them you have RP. Makes you wonder what they think RP patients are suppose to look like. Lots of Love Glenda Hi Glenda, Tell me about your tailbone flares. I have constant pain in my tailbone and when I tell the docs they look at me like I'm from Mars! Elaine in pain ____________________________________________________ IncrediMail - Email has finally evolved - Click Here DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Elaine, LOL No you are not from Mars but I do like the idea of painting ourselves green when we go to the Dr. Could you just imagine!LOL They would probably put us in the funny farm. I had a huge tree fort when I was a kid. I did everything with my dad from remodeling hauling wood. You name it we did it. I always felt sorry for Dad because he was always out numbered by us girls until...started telling people that I was the boy he never had. LOL Those were the days. Now if I could just get around half as good as I used to I would have it made. Lots of Love Glenda Sounds like we were both pretty rough and tumble kids. How many tree forts did you build!!!! I know what you mean about the pain, it is hard to discribe. Just a constant deep dull ache, like the bone crushing. Next time we go into the docs maybe we should paint ourselves green. Maybe that can be the official RP colour!!! Thanks again, Elaine. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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