Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Has anyone done any research on developmental delays associated with wearing the helmet. The only person that we have had any contact with said that their child became developmentaly stagnate until his helmet was removed...he is about 6 months behind his peers now. Mentioned this to the folks crafting our helmet and they acted like that was the strangest thing they have ever heard of. I did find one group of articles that had studied this out of the university of washington. Their premise was that perhaps developmental delays actually led to a small percentage of positional plagiocephaly cases. Got our helmet today...the boy seems to be shell shocked but not miserable. Turned down by our insurace, so I expect we will be battling bc/bs of Tennessee soon. If anyone has had any luck with those guys let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Developmental delays can occur for so many reasons, it's hard to pin it on the helmet (which in most cases weigh very little). Without knowing what one he had, how long he had it, how old he was when he first got it, and what his milestones were before the helmet, it's hard to say, and even knowing those things, it's still hard to say. My son didn't crawl -- he did an "army crawl" on his belly -- but he got to where he wanted to (FAST), and I never brought it up to the pediatrician. He started walking on his first birthday, graduated from the DOCband a few weeks before this. When he was 5 he had a few issues (immature pencil grip, we went to OT for this, who also Dx'd some sensory integration issues, among a few other things. I found out when he was 7 that he has a connective tissue disorder called Ehlers-Danlos Syndrome, which contributed to his low muscle tone (hypotonia) which is why he didn't crawl, or h old a pencil correctly. EDS was not caused by his DOCband. However, it probably helped contribute to his head shape (he had a long narrow (scaphocephalic) head - and was breech and big. EDS is rare -- I'm not saying that this is anyone else's issue!! Some kids have torticollis, others don't like tummy time, others have reflux, others have low muscle tone for other reasons --- etc.... none of these issues are caused by the molding device - but sometimes may cause the head to be mishapened which necessitates a molding device. There are so many variables it would be hard to prove that the molding device was a reason that a developmental delay occurred, expecially since most are used only for 16-24 weeks. Knd of what came first, the chicken or the egg?I hope your son gets used to his helmet quickly -- it really does go fast.Good luck with everything!mom to Quinn, born 11/99, DOCband grad 10/00>------- Original Message ------->From : omekaj[mailto:omekaj@...]>Sent : 6/16/2008 8:26:59 PM>To : Plagiocephaly >Cc : >Subject : RE: Developmental delays...>>Has anyone done any research on developmental delays associated with wearing the helmet. The only person that we have had any contact with said that their child became developmentaly stagnate until his helmet was removed...he is about 6 months behind his peers now. Mentioned this to the folks crafting our helmet and they acted like that was the strangest thing they have ever heard of. I did find one group of articles that had studied this out of the university of washington. Their premise was that perhaps developmental delays actually led to a small percentage of positional plagiocephaly cases.Got our helmet today ....the boy seems to be shell shocked but not miserable. Turned down by our insurace, so I expect we will be battling bc/bs of Tennessee soon. If anyone has had any luck with those guys let me know.------------------------------------For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 I am also concerned about developmental delays too! My son doesn't want to roll around at all with the helmut on (just got it on Thursday - a few days ago). Before he was rolling everywhere. Perhaps it will just take him time to get used to it. He's 10 months old and only sitting and falling over at times (no crawling yet). All this to say, I share in your concerns. Shari Dick Nolan - 10 months, left side plagio, assymetry From: omekaj <omekaj@...>Subject: Developmental delays...Plagiocephaly Received: Monday, June 16, 2008, 8:26 PM Has anyone done any research on developmental delays associated with wearing the helmet. The only person that we have had any contact with said that their child became developmentaly stagnate until his helmet was removed...he is about 6 months behind his peers now. Mentioned this to the folks crafting our helmet and they acted like that was the strangest thing they have ever heard of. I did find one group of articles that had studied this out of the university of washington. Their premise was that perhaps developmental delays actually led to a small percentage of positional plagiocephaly cases.Got our helmet today...the boy seems to be shell shocked but not miserable. Turned down by our insurace, so I expect we will be battling bc/bs of Tennessee soon. If anyone has had any luck with those guys let me know. Now with a new friend-happy design! Try the new Canada Messenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 I think tort can contribute to delays and plagio. I don't think the band contributes. Maybe if a baby has a very weak neck, but not normally. My daughter was on time or early for all her milestones, sitting, crawling, walking all while wearing her starband. She started at 5 mo old, and sat shortly after, and was walking by her graduation just days before she turned 10 mo. She also said a handful of words by that time. Children are different so not everyone will hit their milestones at the same time. -christine sydney 2.5 yrs starband grad. > > Has anyone done any research on developmental delays associated with > wearing the helmet. The only person that we have had any contact with > said that their child became developmentaly stagnate until his helmet > was removed...he is about 6 months behind his peers now. Mentioned > this to the folks crafting our helmet and they acted like that was the > strangest thing they have ever heard of. I did find one group of > articles that had studied this out of the university of washington. > Their premise was that perhaps developmental delays actually led to a > small percentage of positional plagiocephaly cases. > > Got our helmet today...the boy seems to be shell shocked but not > miserable. Turned down by our insurace, so I expect we will be > battling bc/bs of Tennessee soon. If anyone has had any luck with > those guys let me know. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 I feel that the plagio can lead to issues (like baby not moving in utero causing tortocollis) but I do noto believe it causes delays. I do feel that an improporly fitted helmet by an ortho who is inexperienced is not a good thing. To have it moving around on a babies head too much or too tight causing the head no room to grow cant be a good thing. I believe for us the helmet was great but I had an excellent facility and ortho and felt very comfortable throughout the process. Hope you all get the same feeling as you progress through your treatments. Give it a few days hopefully the babies will start acting and completing tasks as they have done prior to banding. Tammy From: christineashok <christineashok@...>Subject: Re: Developmental delays...Plagiocephaly Date: Tuesday, June 17, 2008, 4:43 AM I think tort can contribute to delays and plagio. I don't think theband contributes. Maybe if a baby has a very weak neck, but notnormally. My daughter was on time or early for all her milestones,sitting, crawling, walking all while wearing her starband. She startedat 5 mo old, and sat shortly after, and was walking by her graduationjust days before she turned 10 mo. She also said a handful of words bythat time. Children are different so not everyone will hit theirmilestones at the same time.-christinesydney 2.5 yrs starband grad. >> Has anyone done any research on developmental delays associated with > wearing the helmet. The only person that we have had any contact with > said that their child became developmentaly stagnate until his helmet > was removed...he is about 6 months behind his peers now. Mentioned > this to the folks crafting our helmet and they acted like that was the > strangest thing they have ever heard of. I did find one group of > articles that had studied this out of the university of washington. > Their premise was that perhaps developmental delays actually led to a > small percentage of positional plagiocephaly cases.> > Got our helmet today...the boy seems to be shell shocked but not > miserable. Turned down by our insurace, so I expect we will be > battling bc/bs of Tennessee soon. If anyone has had any luck with > those guys let me know.> Quote Link to comment Share on other sites More sharing options...
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