Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Maybe you should try 2 hours on then one hour off or some sort of variant so that the whole weekend isn't wasted, but you won't have to worry about skin breakdown. Just my opinion, if you have a gut feeling that the red spots are serious then I would leave it off at night. I have also heard that moleskin (it is for blisters you get while hiking, sold at REI, CVS maybe walmart) is good to stick on the foam of a pressure point to mitigate irritation The first weekend of my son's banding we had to leave town and left him with his grandparents (had been planned way before banding) I was really nervous so they kept it on a couple hours and took it off a couple hours then when I returned home I had to take him in to get an adjustment because the ear hole was not large enough and there was to much pressure on his brow. I do think I made the correct decision though on the time he spent in it the first few days.Definitely bring up the on-call issue. I wish there a place where we could rate doctors and how attentive responsible they were so they had some sort incentive to care how their office was managed., mom to Elijah DOC band grad 8/11/08From: mrsd7299 <mrsd7299@...>Subject: Red SpotsPlagiocephaly Date: Saturday, August 30, 2008, 10:29 AM Hi guys, My son has only had his STARband on for 3 days. My therapist said that when I take the band off to wipe his head from sweat I should check for red spots. This morning when I took it off he had two, one on his forehead and one on his left cheek bone. The info she gave me said to keep the band off until the red spots are gone. And if it's over an hour to keep the band off until I speak to them. It's been over an hour and a half. I have tried to call and the voicemail for on call is full. I feel a little let down by them, but I wanted to know if anyone else has had this problem. I don't know what to do. I don't want to hurt him by putting it back on, but I don't want to leave it off until the long weekend is over. Please help! Thanks! Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 I think it's very common to have red spots. My daughter wore hers for 3 weeks before getting any lasting red marks. It just needed a small adjustment and all was well. This early in the game I don't think you should feel let down by the orthotist. But if the poor fit continues throughout treatment, then there might be a bigger issue like an inexperienced orthotist and you may need to look for one that is more experienced. As for the weekend, I agree with the previous poster that you could leave it on for short periods of time over the weekend, checking frequently for skin breakdown. My daughters red spot didn't go away when I left it off overnight, so then I decided to leave it off until the next day when we got back it to have it adjusted. Maybe leave it off tonight and put it back on in the morning if the redness is gone. Amber from PA Corinne, 6 weeks in StarBand and doing great Red Spots Hi guys, My son has only had his STARband on for 3 days. My therapist said that when I take the band off to wipe his head from sweat I should check for red spots. This morning when I took it off he had two, one on his forehead and one on his left cheek bone. The info she gave me said to keep the band off until the red spots are gone. And if it's over an hour to keep the band off until I speak to them. It's been over an hour and a half. I have tried to call and the voicemail for on call is full. I feel a little let down by them, but I wanted to know if anyone else has had this problem. I don't know what to do. I don't want to hurt him by putting it back on, but I don't want to leave it off until the long weekend is over. Please help! Thanks!Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2008 Report Share Posted August 30, 2008 Don't rush it the first weekend. This is very normal. Red spots always happen on the weekend, and the providers aren't in :-) I would recommend keeping the band off. If the red spots turn into skin breakdown you'll have to keep the band off longer for the head to heal. -christine sydney 2.5 yrs starband grad > > Hi guys, My son has only had his STARband on for 3 days. My therapist > said that when I take the band off to wipe his head from sweat I should > check for red spots. This morning when I took it off he had two, one on > his forehead and one on his left cheek bone. The info she gave me said > to keep the band off until the red spots are gone. And if it's over an > hour to keep the band off until I speak to them. It's been over an hour > and a half. I have tried to call and the voicemail for on call is full. > I feel a little let down by them, but I wanted to know if anyone else > has had this problem. I don't know what to do. I don't want to hurt him > by putting it back on, but I don't want to leave it off until the long > weekend is over. Please help! Thanks! > > Mandi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Hi Mandi You should follow the guidelines that your orthotist gave you for monitoring redness related to the type of helmet you have been fitted with. Since I practice in Canada and I make all my own helmets, I have no experience with any of the commercially produced helmets that you have in the states. As an orthosist who has been dispensing plagio helmets for several years I advise my parents to monitor the skin for redness. Any orthosis will leave a pattern of redness on the skin after a period of time. The important part is to determine what redness is ok for the skin and what redness could lead to possible skin breakdown. This is what first time parents have the greatest problem assessing. The general guideline that I use and tell my parents is that upon removing the helmet they should look for redness and note the intensity of the color. The redness color should fade by at least half after 20 minutes of having the helmet off. If it fades by half then that is usually considered normal use redness and continued use of the helmet should be fine. Again check with your orthotist. If the redness lasts longer or is more intense than the guideline given above, the reason for this needs to be assessed by your orthotist. Everyone's skin reacts differently to pressure and containment and the parent is the best judge of how sensitive their child's skin is. When in doubt, call your orthotist. They will be able to advise you more accurately. Mike > > Hi guys, My son has only had his STARband on for 3 days. My therapist > said that when I take the band off to wipe his head from sweat I should > check for red spots. This morning when I took it off he had two, one on > his forehead and one on his left cheek bone. The info she gave me said > to keep the band off until the red spots are gone. And if it's over an > hour to keep the band off until I speak to them. It's been over an hour > and a half. I have tried to call and the voicemail for on call is full. > I feel a little let down by them, but I wanted to know if anyone else > has had this problem. I don't know what to do. I don't want to hurt him > by putting it back on, but I don't want to leave it off until the long > weekend is over. Please help! Thanks! > > Mandi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Thank you Mike. That did help. The redness did not start to fade at all for a good 2 hours, and now today where the red spots were the skin is dry and flaky. I have tried to get a hold of my orthosist, but I can't. They won't be back in the office until Tuesday. I was just debating with my self weather or not to put the band back on. After seeing the breakdown of the skin today I have deiced not to put it back on until I speak with my orthosist. Thanks again for all you help. From: hallm361 <michaelhall@...>Subject: Re: Red SpotsPlagiocephaly Date: Sunday, August 31, 2008, 11:10 AM Hi MandiYou should follow the guidelines that your orthotist gave you for monitoring redness related to the type of helmet you have been fitted with. Since I practice in Canada and I make all my own helmets, I have no experience with any of the commercially produced helmets that you have in the states.As an orthosist who has been dispensing plagio helmets for several years I advise my parents to monitor the skin for redness. Any orthosis will leave a pattern of redness on the skin after a period of time. The important part is to determine what redness is ok for the skin and what redness could lead to possible skin breakdown. This is what first time parents have the greatest problem assessing. The general guideline that I use and tell my parents is that upon removing the helmet they should look for redness and note the intensity of the color. The redness color should fade by at least half after 20 minutes of having the helmet off. If it fades by half then that is usually considered normal use redness and continued use of the helmet should be fine. Again check with your orthotist.If the redness lasts longer or is more intense than the guideline given above, the reason for this needs to be assessed by your orthotist.Everyone's skin reacts differently to pressure and containment and the parent is the best judge of how sensitive their child's skin is. When in doubt, call your orthotist. They will be able to advise you more accurately.Mike >> Hi guys, My son has only had his STARband on for 3 days. My therapist > said that when I take the band off to wipe his head from sweat I should > check for red spots. This morning when I took it off he had two, one on > his forehead and one on his left cheek bone. The info she gave me said > to keep the band off until the red spots are gone. And if it's over an > hour to keep the band off until I speak to them. It's been over an hour > and a half. I have tried to call and the voicemail for on call is full. > I feel a little let down by them, but I wanted to know if anyone else > has had this problem. I don't know what to do. I don't want to hurt him > by putting it back on, but I don't want to leave it off until the long > weekend is over. Please help! Thanks!> > Mandi> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hello, My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. Does anyone have any ideas or remedies for red spots? Thanks for any info! -Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 My son still gets them a lot. We were told to put cortisone cream till the redness went down and then switch to neosporin. Its worked well for my son. He gets them from time to time cause his skin is so sensitiveSent via BlackBerry from T-MobileFrom: "rquartaro" Date: Tue, 10 Mar 2009 11:26:22 -0000<Plagiocephaly >Subject: Red Spots Hello, My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. Does anyone have any ideas or remedies for red spots? Thanks for any info! -Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 It definitely sounds like heat rash, the sideburn area is the most common spot for it. My son had some, and I didn't really treat it at all because the rash would fade by the time we were ready to put his band back on after his bath. But you can use hydrocortizone cream on it, just be sure it's really dried into his skin before you put the band back on. Usually heat rash goes away or lessens after their bodies completely adjust to the extra heat, so hopefully it is just a temporary issue. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > Hello, > > My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. > > Does anyone have any ideas or remedies for red spots? Thanks for any info! > > > -Rob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Just to clarify, are the spots getting blistery at all? To compare it to diaper rash (as your ortho did) seams a little harsher to me than general heat rash. I think of diaper rash as more painful, heat rash just seems like red skin in comparison, not as much moisture as heat being the problem. I would probably check with your ortho about the hydrocortizone cream just to be sure before using it (I wouldn't want it to sting or anything). Also, if your daycare is comfortable with taking the band off and on, maybe they could take it off a couple of times a day to wipe his head down and let the sideburn area dry. If they keep it to 15 minutes or less each time (it really should only take about 5), you still have a half hour at night to give him his bath. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > > > Hello, > > > > My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. > > > > Does anyone have any ideas or remedies for red spots? Thanks for any info! > > > > > > -Rob > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Just watch the redness. If it doesn't go away, I wouldn't put the helmet back on until it does and call your orthotist if that isn't within an hour or maybe two. My son has very sensitive skin and twice the redness turned into an infection and he had to be on antibiotics and keep the helmet off for at least a week while it healed (last time he was out of the helmet for 2 weeks, and he's back out of it now since Friday with another infection). That said, he has had slight red marks in the sideburns area and a few other places that went away entirely during the hour off... > > > > > > Hello, > > > > > > My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. > > > > > > Does anyone have any ideas or remedies for red spots? Thanks for any info! > > > > > > > > > -Rob > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Thanks everyone! It sounds to me like heat rash. It does usually go away pretty quickly. We took his helmet off on Saturday when it was really bad, and left it off for the rest of the weekend. The redness went away, but his skin was dry and flaky for a day or so. Anyway, my wife took him in today (of course, the redness wasn't that bad while he was there...), and she just suggested we continue to try and keep it dry, and maybe put a dab of diaper creme on it once a day. She seemed to think it was from the moisture. It wasn't too bad at bathtime tonight, so I guess I'll just try to keep an eye on it. Thanks for all your responses! -Rob > > > > > > > > Hello, > > > > > > > > My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. > > > > > > > > Does anyone have any ideas or remedies for red spots? Thanks for any info! > > > > > > > > > > > > -Rob > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 My son has been in his DOC Band for 2.5 weeks now and has had all kinds of skin irritation. He had heat rash that flared up on his forehead the third day that he was wearing it. It looked more like the shape of the helmet rather than spots. But he latter started getting spots too. I ended up taking to the pediatritian to look at the spots on his head that started oozing puss. He said that it was actually a really bad case of cradle cap and that we should wash his hair with a dandruff shampoo to clear it up and it worked great! Now all the spots are just about gone but he still has really bad exema all over his back, arms, and legs. I think I'll have to take him to a dermatoligist to figure out what is going on. Man, this kid sure keeps me on my toes! Tanner- 7 months in DOC Band since 2/19/09 > > > > > > > > > > Hello, > > > > > > > > > > My son got his helmet about a week ago, and he's getting pretty bad red spots in his side-burn area. The tech told us it was like a diaper rash, and we should do our best to keep it dry. He's in daycare, so all we can do is hope they are keeping him clean as best as possible. > > > > > > > > > > Does anyone have any ideas or remedies for red spots? Thanks for any info! > > > > > > > > > > > > > > > -Rob > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 You should just keep the band off until you can get in to see the ortho... it may need to be adjusted. I've always heard that hydrocortizone cream is good... but some of the latest info is saying that may not be the best in case it's a bacterical rash... the cream could make it worse. Call the ortho 1st thing in the am and get in to see them ASAP! :-) Jen Mom to Luli - 3 yrs old Torticollis, Plagio, Syringomyelia red spots Hello~ Nora has been wearing her helmet for almost three weeks. She jsut developed a red spot on the side of her head that looks so sore (and rashy). She has really sensitive skin anyways. Of course, I can't get in touch with anyone in the office over the weekend. Any hints on what to put on it, if anything? I feel so much better knowing I am not alone in this journey. Thanks for all of the advice going around! Carolyn A Great Credit Score is 750 or Higher. See Your 3 CREDIT SCORES FREE - Online! Quote Link to comment Share on other sites More sharing options...
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