- referral

[Guest guest]

Hi ,

I see Dr Buckner in Seattle, and she's great! It's also probably one

of the closest flights you can take, and she's right near downtown.

Let me know if you have any questions about her.

> Thank you, everyone, for your assistance with my decision about the

> laryngoscopic procedure....it sure helps to have the experience of

fellow

> RPers ease my mind.

>

> Here's another question that I have re: stents.

>

> VERONICA HARVEY, I hope that you're still on the group's listing,

as I

> lost your e-mail address,

>

> I just got back from a follow up visit with my pulmonologist for my

acute

> bronchitis. He strongly suggests that I consider flying up to the

> mainland to a clinic that's familiar in treating RP for a consult

re: a

> comprehensive assessment for possible stents in the future. I've

had

> tracheal involvement for the past 3 years,and, it seems to be

> worsening....need to be prepared.

>

> In Hawaii, there are NO surgeons who are familiar with bronchial -

> tracheal stenting.

>

> Carolyn went to the Mayo Clinic, but, I kinda hate to fly so far to

> Rochester, Minnesota. I recall Harvey saying that she had

to

> check on her stents every quarter. But, I had forgotten where in

San

> Diego she went to.

>

> If anyone would like to personally recommend their RP

clinic/surgeon/doc,

> I would appreciate finding out from you their names/phone numbers.

>

> I'd like to give this info to my rheumy and perhaps set up a

consult. I

> did consult with Dr. Trentham back in 1993, and will also try to

find out

> who he recommends.

>

> If I have to fly to the Mayo Minnesota clinic, I guess I could,

but, it

> would be so much easier ( & economical) to fly to the west coast

instead

> of the east coast, especially for follow ups.

>

> Thank you so much! Aloha, karen