Re: Stash

[Guest guest]

In response to your post, my pain has always been right sided (back

pain) and that is typical of pancreatic pain, I did intially have

some lt side back pain but that switched quickly. When I wake up my

entire back hurts if feels like my spine is breaking. If your

physician doesn't feel like you have cp what is their explaination

for your pain, don't let them try to talk you out of pain, I had a

pain management Dr. once who told I had muscle pain and needed

trigger point injections, I was at the end of my rope at that time,

my husband spoke up and said " We are never going back to that

quack " I had tried to tell her that my diarrhea was out of control

and that the lomotil was not working she ignored me I ended up in

the hospital a few days later it took 6 liters of fluid to make

enough urine for a urinalysis, I should have been in renal failure I

was so dry, my potassium was so low that it had effected my heart

rhythm my ekg revealed that I had experienced 2 heart attacks( It

was not unusual for my potassium and magnesium to be low and need

bolus') but this time it took 3 and I was having seizure activity.

Your complaints of pain with activity are exactly like mine,

sometimes all it takes is the placing of my foot down when walking

it feels like getting slammed in the back with a sledge hammmer with

every step. Sometimes it is with stupid stuff for example I was

volunteering at our church out pastor was giving out ink pens for

those that have done special jobs for him in the church and I was

rolling them in a little note and tying it with ribbon the repeative

activity was enough to cause the pounding pain. I have found that

since I had the intrathecal pump put in I can handle short periods

of activity usually no more than a few hours and then I have to take

breakthrough pain meds, I use actiq transmucosal losenges, they work

well for me.

Atwell LPN