Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 If you want to hear from people with experience not banding check out the Older Plagio group - OlderPlag/ It is for parents of older children with Positional Plagiocephaly that was never treated with a Cranial device and a support group for parents of children 2 years and older dealing with the effects of Positional Plagiocephaly. Most, if not all, of the parents regret not banding. Molly Novato, California Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6 , 9 study data one-sided? Hi again, I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. - ------------------------------------ For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. http://www.thefilyaws.com/plagio/cti1196.pdf Jen Mom to Luli - 3 yrs old Torticollis, Plagio, Syringomyelia study data one-sided? Hi again, I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. - Job Hunting? Start with the companies that posted job openings this week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 Thanks for the feedback and the link. > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not?have a problem and therefore there is nothing to follow.? If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider.? You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " .? > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > http://www.thefilyaws.com/plagio/cti1196.pdf > > > > Jen > Mom to Luli - 3 yrs old > Torticollis, Plagio, Syringomyelia > > > study data one-sided? > > > > > > > Hi again, > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 Thanks for the info, this is the kind of stuff I was looking for. > > If you want to hear from people with experience not banding check out the > Older Plagio group - OlderPlag/ > It is for parents of older children with Positional Plagiocephaly that was > never treated with a Cranial device and a support group for parents of > children 2 years and older dealing with the effects of Positional > Plagiocephaly. > > Most, if not all, of the parents regret not banding. > > Molly > Novato, California > Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, > Graduate! > , 6 > , 9 > > study data one-sided? > > Hi again, > > I've been trying to do research about plagiocephaly and the amount of change > a child's head can go through without an orthotic/helmet. I've found a lot > of data about how a child's head shape can be improved through use of a > helmet, but none about what happens without the use of a helmet. Does this > data simply not exist? I don't imagine that everyone who visits Cranial > Tech or any other company gets a helmet, right? I mean, there is a > significant scare factor and when dealing with the well being of your child, > I bet the percent of people that opt to band their kids is high. But still > there must be some parents that chose not to, especially considering that it > seems from my reading that many/most pediatricians say it is not necessary, > along with even neurologists (who I never considered visiting). Some people > have to be taking the advice of pediatricians and not banding I would think. > So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who > chose not to band had no issues whatsoever in the future, perhaps not even > cosmetic ones, which would explain why no one speaks up... maybe there is > just nothing to say. > > - > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 -After visiting several doctors for their opinions, my husband and I have chosen to not band our daughter, now 5 mos old and diagnosed at 2 mos, right away. At the advise of our family doc as well as a cranial facial doc, we are waiting another couple of months, continuing her stretches and pt at home to correct her torticollis as well as continuing aggressive repositioning.I have to say, at first, I was 100% pro helmet, but as I have had my questions answered and have seen the progress that my daughter has made in 3 months, I am not so much for a helmet in her case anymore. Her ear asymmetry has improved as well as the flatness on the back right side of her head. My husband and I have been diligent about documenting her progress with several picture angles each month and can see a major improvement from month to month. Although, her plagio was never severe enough to affect her facial bones. So, I can't say that I would have the same opinion if it had. I also cannot speak on behalf of everyone who's child had mild- moderate plagio w/ tort as to which would be better. I understand completely how it is to have to make that decision for your child in what could affect them emotionally for the rest of their lives.But, speaking for us. We have decided to wait another 2 months and then re-evaluate her. She will still be in the window for treatment, so that is why at this time, we chose not to band her.I hope this helps!From: JenandLuli@... <JenandLuli@...>Subject: Re: study data one-sided?Plagiocephaly Date: Tuesday, March 24, 2009, 6:24 AM Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. http://www.thefilya ws.com/plagio/ cti1196.pdf Jen Mom to Luli - 3 yrs old Torticollis, Plagio, Syringomyelia study data one-sided? Hi again, I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. - Job Hunting? Start with the companies that posted job openings this week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@... <JenandLuli@...> > Subject: Re: study data one-sided? > Plagiocephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 I have chosen not to band my 7 month old son. His plagio went from mild/moderate with repositioning, CST, and pt for torticollis, to mild. He has no facial asymmetry but his ears are still slightly off. I too have tried to reach out to others who have chosen not to band, but it seems those who choose not to don't keep up with these groups. I would assume that there propbably are more people who have chosen not to band (or didn't know to do otherwise) than there are those who have. I would certainly band if his case was more severe, but I don't see that the few milimeters of improvement he may or may not get from a helmet would be worth the experience in his case. (I know experience ranges from loving it to hating it.) I am happy with his appearance and there are no signs of jaw misalignment or any such issues. I find little support from these groups for the decision i've made. When I have posted a similar question and read others like yours, there is always the response to check out the older kids with plagio group, that they all regret not banding- insinuating that I am making the wrong choice and my son will resent me later in life. I find it presumptuous that someone who has never even seen my child can judge wether or not he needs a helmet. I think that the option to band is wonderful, but it is an option and not necessary for every child who has mild plagio. I do wish that those who choose not to band would stay connected so this information would be less one sided. I HAVE heard a few stories in other places from moms who chose not to band and are happy with their older child's apperance and have NO regrets, although they do say their child's heads never rounded out perfectly. My head is certainly not perfectly symmetrical! Anyway I would say in my experience the info is definitely one sided. Maybe as you said, for many who chose not to band, there were no further issues, and therefore nothing to say. I guess time will only tell for us! I can only trust my instincts, my husband's, and the professionals we've been working with. Hope this is some food for thought. .com> wrote: From: ambloved <ambloved@...>Subject: Re: study data one-sided?Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.)Personally, I had saw lots of change with repositioning, but not enough in the end.Annie> > From: JenandLuli@. .. <JenandLuli@ ...>> Subject: Re: study data one-sided?> Plagiocephaly> Date: Tuesday, March 24, 2009, 6:24 AM> > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects.> > http://www.thefilya ws.com/plagio/ cti1196.pdf> > > > > > > > Jen> > Mom to Luli - 3 yrs old> > Torticollis, Plagio, Syringomyelia> > > > > study data one-sided?> > > > > > > > > > > > > > Hi again,> > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your> experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.> > > > -> > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hi , I'm one of the group moderators. Sorry you don't feel the group is supportive of you. We do try, but all have our own experience. We have one mod who is a repo mommy - Becky. The rest of us did band our children. I would have avoided it if possible, but my daughter's head was pretty severe. Even post banding her head is not perfect. We asked about her head at 2 mo, and if our ped had given us good advice I think we could have avoided banding too. Instead it just got worse (also my daughter's head grew super fast from birth to 6 mo). I often ask parents to post pics before recommending banding or not to see if the shape is severe. Please feel free to be active in the group and encourage more parents not to band ;-) The more opinions the better. -christine sydney 3yrs starband grad > > > > From: JenandLuli@ .. <JenandLuli@ ...> > > Subject: Re: study data one-sided? > > Plagiocephaly > > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > > > > > > > > > Jen > > > > Mom to Luli - 3 yrs old > > > > Torticollis, Plagio, Syringomyelia > > > > > > > > > > study data one-sided? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi again, > > > > > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I am also sorry you have felt unsupported in your decision to not band. We have had a number of successful repositioning stories on this board, but unfortunately, those parents don't seem to stick around for long. What's most important is that you (or any parent) are happy with the shape of your child's head. I guess what partly makes us so defensive and pro banding in general is that so many of us are given the brush off by our doctors and told that it will round out naturally. If, instead, we were advised to aggressively reposition or seek alternative treatments like CST and others, and we were given the opportunity to do everything we could to AVOID banding, then a lot of us probably wouldn't be on this board. The doctors, for the most part, have such an unconcerned air about them regarding flat heads and they just say, " oh, well just lay him on the other side whenever you can and it will be fine. " Unfortunately, in a lot of circumstances it's not fine (especially when tort is involved), and by then it's too late for repositioning. So I applaud your repositioning efforts and I hope you do stick around to provide repo support and tips to other parents looking for help. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > > > > > From: JenandLuli@ .. <JenandLuli@ ...> > > > Subject: Re: study data one-sided? > > > Plagiocephaly > > > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > > > > > > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > > > > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > > > > > > > > > > > > > > > > > Jen > > > > > > Mom to Luli - 3 yrs old > > > > > > Torticollis, Plagio, Syringomyelia > > > > > > > > > > > > > > > study data one-sided? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi again, > > > > > > > > > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > > > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I am glad you were able to avoid banding your son. I have one band graduate and a repo grad. So I have gone both ways. My banded baby was high moderate to severe and my repo grad was mild. I just think every case is different. We all have to follow our instincts and heart and do what we think is right for our children and situation. Angie study data one-sided?> > > > > > > > > > > > > > Hi again,> > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your> experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.> > > > -> > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I think its every parents personal choice whether or not to band. The key matter is, you were happy with your childs head shape and that's great!!! I, like other moms here were not and possibly with a more severe case. You're right, other parents who chose not to band probably don't keep up with the boards because, as you said, they too were obviously happy with things therefore no reason to need support. Whereas, with myself, I needed to talk to other parents going through this. I chose to band because my sons case was severe and I didn't want to regret my choice later. And though we have had a long road, I don't regret the choice to band. I'm glad that you are happy with your choice, that is what matters most! I understand your frustration about things being one sided, but yes majority of people do choose to band, so we don't have a lot of advice for those who didn't, or else, we too would not be here. Just as you felt upset at the fact people made you feel bad for NOT banding, sometimes when someone comes and posts all the reasons why they didn't etc, it can have the same effect on us as well. The bottom line, its personal choice and each choice is best for each familySent via BlackBerry from T-MobileFrom: amanda cram Date: Thu, 26 Mar 2009 22:33:36 -0700 (PDT)<Plagiocephaly >Subject: Re: study data one-sided? I have chosen not to band my 7 month old son. His plagio went from mild/moderate with repositioning, CST, and pt for torticollis, to mild. He has no facial asymmetry but his ears are still slightly off. I too have tried to reach out to others who have chosen not to band, but it seems those who choose not to don't keep up with these groups. I would assume that there propbably are more people who have chosen not to band (or didn't know to do otherwise) than there are those who have. I would certainly band if his case was more severe, but I don't see that the few milimeters of improvement he may or may not get from a helmet would be worth the experience in his case. (I know experience ranges from loving it to hating it.) I am happy with his appearance and there are no signs of jaw misalignment or any such issues. I find little support from these groups for the decision i've made. When I have posted a similar question and read others like yours, there is always the response to check out the older kids with plagio group, that they all regret not banding- insinuating that I am making the wrong choice and my son will resent me later in life. I find it presumptuous that someone who has never even seen my child can judge wether or not he needs a helmet. I think that the option to band is wonderful, but it is an option and not necessary for every child who has mild plagio. I do wish that those who choose not to band would stay connected so this information would be less one sided. I HAVE heard a few stories in other places from moms who chose not to band and are happy with their older child's apperance and have NO regrets, although they do say their child's heads never rounded out perfectly. My head is certainly not perfectly symmetrical! Anyway I would say in my experience the info is definitely one sided. Maybe as you said, for many who chose not to band, there were no further issues, and therefore nothing to say. I guess time will only tell for us! I can only trust my instincts, my husband's, and the professionals we've been working with. Hope this is some food for thought. .com> wrote:From: ambloved <ambloved >Subject: Re: study data one-sided?Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PMI just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.)Personally, I had saw lots of change with repositioning, but not enough in the end.Annie> > From: JenandLuli@. .. <JenandLuli@ ...>> Subject: Re: study data one-sided?> Plagiocephaly> Date: Tuesday, March 24, 2009, 6:24 AM> > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects.> > http://www.thefilya ws.com/plagio/ cti1196.pdf> &g t; > > > > > > Jen> > Mom to Luli - 3 yrs old> > Torticollis, Plagio, Syringomyelia> > > > > study data one-sided?> > > > > > > > > > > > > > Hi again,> > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your> experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.> > > > -> > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I am always confused when parents decide not to band their children. And it’s not that I would ever judge, few of us have ever met (or really know) one another or our respective children. But I suppose that my perspective is different because we had an older child with severe brachy. To me, I always ask myself, “What is the downside to banding?” You certainly know what the potential downside is to not banding. All heads do not round out on their own. They just continue to grow bigger and the differences look smaller over time. And it’s not something that you can wait until your child is two and say, “Yes, we still have some seriously noticeable asymmetry or flat spots and would like to move forward with banding now.” That option will be off the table. Again, not being mean, difficult or judgmental, but , what potential negatives are keeping you from some form of corrective banding? Maybe there are things I’ve just never thought about. I hope that the repositioning efforts continue to work great for you. As you’ve said, in your case if it might be just a few mm’s, maybe it’s not that big of a deal. In our case, I would have been overjoyed to be able to start treatment for our son at such a young age! Anyway, best of luck. Here’s to wishing that all of our kids are roaming the adult world with nice round coconuts (and smiles to match)! From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of amanda cram Sent: Thursday, March 26, 2009 10:34 PM Plagiocephaly Subject: Re: study data one-sided? I have chosen not to band my 7 month old son. His plagio went from mild/moderate with repositioning, CST, and pt for torticollis, to mild. He has no facial asymmetry but his ears are still slightly off. I too have tried to reach out to others who have chosen not to band, but it seems those who choose not to don't keep up with these groups. I would assume that there propbably are more people who have chosen not to band (or didn't know to do otherwise) than there are those who have. I would certainly band if his case was more severe, but I don't see that the few milimeters of improvement he may or may not get from a helmet would be worth the experience in his case. (I know experience ranges from loving it to hating it.) I am happy with his appearance and there are no signs of jaw misalignment or any such issues. I find little support from these groups for the decision i've made. When I have posted a similar question and read others like yours, there is always the response to check out the older kids with plagio group, that they all regret not banding- insinuating that I am making the wrong choice and my son will resent me later in life. I find it presumptuous that someone who has never even seen my child can judge wether or not he needs a helmet. I think that the option to band is wonderful, but it is an option and not necessary for every child who has mild plagio. I do wish that those who choose not to band would stay connected so this information would be less one sided. I HAVE heard a few stories in other places from moms who chose not to band and are happy with their older child's apperance and have NO regrets, although they do say their child's heads never rounded out perfectly. My head is certainly not perfectly symmetrical! Anyway I would say in my experience the info is definitely one sided. Maybe as you said, for many who chose not to band, there were no further issues, and therefore nothing to say. I guess time will only tell for us! I can only trust my instincts, my husband's, and the professionals we've been working with. Hope this is some food for thought. ..com> wrote: From: ambloved <ambloved@...> Subject: Re: study data one-sided? Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@. .. <JenandLuli@ ...> > Subject: Re: study data one-sided? > Plagioc ephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hi. I just wanted to say CONGRATS on doing such a great job with the repo and everything and being able to avoid a band! I'm sorry to hear that you didn't feel that you had any support on this board. While it's true that most of the people on here do get bands, there are also those people who were successful with repo and decided not to band. I would have LOVED nothing more than to be able to avoid a band for my Daughter, but since she was high moderate (14mm CVA) and had moderate tort, the repo just didn't work for us. So, for us, the decision to band her wasn't a hard one. I don't think that the people on this board had any intention of being unsupportive, nor are we all " pro band " , but we usually just encourage people to decide if THEY are happy with their baby's head shape and that if the answer is no, then banding may be a good option. As some of the others said, it's true that people who are successful with repo and who decide not to band often don't stay on the board to support others who may do the same. Often times I think that people who ARE successful with repo and are happy with their baby's head shape don't feel the " need " to remain a part of the group. But, we need THEM just as much so that new members can see every point of view and gets tips from people who banded AND from people who didn't. It's all a matter of personal opinion and experience as to whether or not to band your child. I am very happy for you that you have seen succes with repo and that you are pleased with your Son's head and he will not need a band. If you are able, it would be great if you could stay on the board to share your experience and tips with others. Jen > > > > From: JenandLuli@ .. <JenandLuli@ ...> > > Subject: Re: study data one-sided? > > Plagiocephaly > > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > > > > > > > > > Jen > > > > Mom to Luli - 3 yrs old > > > > Torticollis, Plagio, Syringomyelia > > > > > > > > > > study data one-sided? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi again, > > > > > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 There should be nothing confusing about choosing to not band. My husband and I have chosen not to band our 5 month old daughter at this time, and are very happy with that decision. The repro and pt for her tort is helping tremendously. If when we return to her specialist in 2 months, and there is not further progress, then we will consider a band.There are many reasons why some have chosen not to band their child. Success with repro and pt, financial, the risk of no improvement with an expensive helmet, and many more. I don't think it's fair to come down on those who choose not to band. It's their child and whatever they feel is best, then that should be respected. From: ambloved <ambloved (DOT) com> Subject: Re: study data one-sided? Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@. .. <JenandLuli@ ...> > Subject: Re: study data one-sided? > Plagioc ephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hi there. I am fairly new to the group and mainly read other's posts and never made any myself but felt compelled to reply to yours. My son had very mild plagio which was evident from about 4 mos. My pediatrician recommended we band him. My husband and I were totally, 100% against banding him and decided to do some repo and see if we saw any progress. I'll admit the reason I didn't want to band him orginally were mainly selfish reasons, I didn't want people looking at him in public like something was wrong with him and I couldn't imagine my handsome little boy with a big plastic helmet on for 3 or more mos. Not to mention, our insurance company did not cover a penny. We came into some extra cash when my son was 7 mos old and decided to reevaluate our decision. While we had seen some slight improvement in his head shape, it wasn't significant. In the end we did decide to band him at 7.5 mos. and I must say it was the best decision we have made thus far in his life. While we never thought his head shape was that bad to begin with the results so far have been absolutely amazing. The band has not phased my son one bit. He sleeps, plays and acts like it's not even there. It's actually protected his head from falls when he was learning to sit and crawl. We're going on 6 weeks with it and have approx 4 - 6 more weeks to go. We decided to go with the band mainly because we felt as if we may regret it later if we didn't do it, but definitely wouldn't regret it if we did do it. I do know how you feel....they didn't make bands a while ago and we don't have flat heads! My son also has never had any facial assymetry and only a slight difference in ear alignment. I do wonder if the money we spent on his band would've been better spent on a college fund, but in the end his progress has been so overwhelming that I firmly stand behind our decision and have absolutely no regrets. Some more food for thought..... > > > > From: JenandLuli@ .. <JenandLuli@ ...> > > Subject: Re: study data one-sided? > > Plagiocephaly > > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > > > > > > > > > Jen > > > > Mom to Luli - 3 yrs old > > > > Torticollis, Plagio, Syringomyelia > > > > > > > > > > study data one-sided? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi again, > > > > > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I don't think anyone came down on you, everyone respects others choices here. Its wonderful you have had such great success. Hopefully you're lucky and don't need a band, but, we all have needed one and everyone has had success with a helmet. I am a single mom, and while the cost was high, I'd rather pay the money, than to let things get too late. Which, you are on top of things, that's good. was just stating with as high of a success rate that banding has, and very few of us here chose not to band, it can be confusing for some. Sent via BlackBerry from T-MobileFrom: Abfall-Paston Date: Fri, 27 Mar 2009 11:56:14 -0700 (PDT)<Plagiocephaly >Subject: RE: study data one-sided? There should be nothing confusing about choosing to not band. My husband and I have chosen not to band our 5 month old daughter at this time, and are very happy with that decision. The repro and pt for her tort is helping tremendously. If when we return to her specialist in 2 months, and there is not further progress, then we will consider a band.There are many reasons why some have chosen not to band their child. Success with repro and pt, financial, the risk of no improvement with an expensive helmet, and many more. I don't think it's fair to come down on those who choose not to band. It's their child and whatever they feel is best, then that should be respected. From: ambloved <ambloved (DOT) com> Subject: Re: study data one-sided? Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@. .. <JenandLuli@ ...> > Subject: Re: study data one-sided? > Plagioc ephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say "We are going to band this baby and not going to band that baby to see what happens". > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Antonia, no big deal. Of course I didn’t mean to offend anyone, you know that about me! I guess that my perspective is a bit different because we didn’t have a chance for repositioning as we adopted our son at 14+ months. The financial part I get, but look at the lengths that you’ve gone to get the money for your band? My question simply was, what’s the downside to banding? It doesn’t have to be either repo/pt OR banding. We did both and still go to pt once a week. And the risk of no improvement with an expensive helmet? If you don’t see improvement with a helmet, I find it very unrealistic that you will see improvement just by repo/pt! I think it’s great that some see such great results without banding. Just tough for me to imagine passing on an opportunity at 5-6 months to get what should be extremely fast correction. I wish that we had that option! No need for anyone to get defensive. You all know what’s best for your own child. Just one guy’s humble opinion anyway, and I won’t post any more about it. From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of mommy2jaylina@... Sent: Friday, March 27, 2009 1:34 PM Plagiocephaly Subject: Re: study data one-sided? I don't think anyone came down on you, everyone respects others choices here. Its wonderful you have had such great success. Hopefully you're lucky and don't need a band, but, we all have needed one and everyone has had success with a helmet. I am a single mom, and while the cost was high, I'd rather pay the money, than to let things get too late. Which, you are on top of things, that's good. was just stating with as high of a success rate that banding has, and very few of us here chose not to band, it can be confusing for some. Sent via BlackBerry from T-Mobile From: Abfall-Paston Date: Fri, 27 Mar 2009 11:56:14 -0700 (PDT) <Plagiocephaly > Subject: RE: study data one-sided? There should be nothing confusing about choosing to not band. My husband and I have chosen not to band our 5 month old daughter at this time, and are very happy with that decision. The repro and pt for her tort is helping tremendously. If when we return to her specialist in 2 months, and there is not further progress, then we will consider a band. There are many reasons why some have chosen not to band their child. Success with repro and pt, financial, the risk of no improvement with an expensive helmet, and many more. I don't think it's fair to come down on those who choose not to band. It's their child and whatever they feel is best, then that should be respected. From: ambloved <ambloved (DOT) com> Subject: Re: study data one-sided? Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@. .. <JenandLuli@ ...> > Subject: Re: study data one-sided? > Plagioc ephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Yes I was clarifying for ya! Lol. I too am confused by some not banding.Sent via BlackBerry from T-MobileFrom: "Duval" Date: Fri, 27 Mar 2009 17:05:32 -0700<Plagiocephaly >Subject: RE: study data one-sided? Antonia, no big deal. Of course I didn’t mean to offend anyone, you know that about me! I guess that my perspective is a bit different because we didn’t have a chance for repositioning as we adopted our son at 14+ months. The financial part I get, but look at the lengths that you’ve gone to get the money for your band? My question simply was, what’s the downside to banding? It doesn’t have to be either repo/pt OR banding. We did both and still go to pt once a week. And the risk of no improvement with an expensive helmet? If you don’t see improvement with a helmet, I find it very unrealistic that you will see improvement just by repo/pt! I think it’s great that some see such great results without banding. Just tough for me to imagine passing on an opportunity at 5-6 months to get what should be extremely fast correction. I wish that we had that option! No need for anyone to get defensive. You all know what’s best for your own child. Just one guy’s humble opinion anyway, and I won’t post any more about it. From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of mommy2jaylinaaolSent: Friday, March 27, 2009 1:34 PMPlagiocephaly Subject: Re: study data one-sided? I don't think anyone came down on you, everyone respects others choices here. Its wonderful you have had such great success. Hopefully you're lucky and don't need a band, but, we all have needed one and everyone has had success with a helmet. I am a single mom, and while the cost was high, I'd rather pay the money, than to let things get too late. Which, you are on top of things, that's good. was just stating with as high of a success rate that banding has, and very few of us here chose not to band, it can be confusing for some. Sent via BlackBerry from T-Mobile From: Abfall-Paston Date: Fri, 27 Mar 2009 11:56:14 -0700 (PDT)<Plagiocephaly >Subject: RE: study data one-sided? There should be nothing confusing about choosing to not band. My husband and I have chosen not to band our 5 month old daughter at this time, and are very happy with that decision. The repro and pt for her tort is helping tremendously. If when we return to her specialist in 2 months, and there is not further progress, then we will consider a band. There are many reasons why some have chosen not to band their child. Success with repro and pt, financial, the risk of no improvement with an expensive helmet, and many more. I don't think it's fair to come down on those who choose not to band. It's their child and whatever they feel is best, then that should be respected. From: ambloved <ambloved (DOT) com> Subject: Re: study data one-sided? Plagiocephaly Date: Tuesday, March 24, 2009, 10:16 PM I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) Personally, I had saw lots of change with repositioning, but not enough in the end. Annie > > From: JenandLuli@. .. <JenandLuli@ ...> > Subject: Re: study data one-sided? > Plagioc ephaly > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > Jen > > Mom to Luli - 3 yrs old > > Torticollis, Plagio, Syringomyelia > > > > > study data one-sided? > > > > > > > > > > > > > > Hi again, > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > - > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 That is wonderful news. I'm sure that most of us wish that our repositioning efforts had been so successful. I wish that we could have avoided going with the helmet. I'd love to see pictures of the changes. , mom to , 19 months 18.5 weeks in STARband plus CST land study data one-sided? Hi again,I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.- Job Hunting? Start with the companies that posted job openings this week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hi, I just wanted to let you know that we did band our daughter, my husband was totally against it and i was on the fence. She only wore the band for one week. She did not respond well to wearing the band and due to some severe postpartum depression i was in no condition to push through that very tough first week. I'm still with the group and do read most of the posts. I've considered leaving but I stay in case anyone wants perspective from someone who didn't band (doesn't happen a whole lot as you can see!) My daughter is a beautiful little girl. Her head is NOT perfect. It has not 'rounded out'. she has slight facial asymmetry. But we don't dwell on her head shape and we don't dwell on the decisions we made in the past. We just go forward and take each day as it comes. I too have felt unsupported at times, but then I remind myself that everyone is making the decisions that are best for them, and it just so happens that most everyone on the board has chosen to band. So glad to hear you had such success without banding!! -- In Plagiocephaly , amanda cram <dustypages23@...> wrote: > > I have chosen not to band my 7 month old son. His plagio went from mild/moderate with repositioning, CST, and pt for torticollis, to mild. He has no facial asymmetry but his ears are still slightly off. I too have tried to reach out to others who have chosen not to band, but it seems those who choose not to don't keep up with these groups. I would assume that there propbably are more people who have chosen not to band (or didn't know to do otherwise) than there are those who have. I would certainly band if his case was more severe, but I don't see that the few milimeters of improvement he may or may not get from a helmet would be worth the experience in his case. (I know experience ranges from loving it to hating it.) I am happy with his appearance and there are no signs of jaw misalignment or any such issues. I find little support from these groups for the decision i've made. When I have posted a similar question and read others like yours, > there is always the response to check out the older kids with plagio group, that they all regret not banding- insinuating that I am making the wrong choice and my son will resent me later in life. I find it presumptuous that someone who has never even seen my child can judge wether or not he needs a helmet. I think that the option to band is wonderful, but it is an option and not necessary for every child who has mild plagio. I do wish that those who choose not to band would stay connected so this information would be less one sided. I HAVE heard a few stories in other places from moms who chose not to band and are happy with their older child's apperance and have NO regrets, although they do say their child's heads never rounded out perfectly. My head is certainly not perfectly symmetrical! Anyway I would say in my experience the info is definitely one sided. Maybe as you said, for many who chose not to band, there were no further issues, and > therefore nothing to say. I guess time will only tell for us! I can only trust my instincts, my husband's, and the professionals we've been working with. Hope this is some food for thought. > > .com> wrote: > > From: ambloved <ambloved@...> > Subject: Re: study data one-sided? > Plagiocephaly > Date: Tuesday, March 24, 2009, 10:16 PM > > > > > > > I just want to comment here. First I think MILD anything is hard to decide on, but moderate to severe plagio, especially with facial asymmetry needs help of SOME sort. My sister-in-law had untreated spine asymmetry and it has caused asymmetry in the rest of her neck, head, jaw, lower back and body. From this she is in constant pain in one place or other. She is the one who told me to get my son with moderate-severe plagio treated no matter what. > Unless some doctor with extra time decides to make a study of something, it just gets documented in individual charts of patients of a bunch of different doctors and not brought together to be looked at as a whole. (For instance I'm sure my sister-in-law is not the only person never treated for spinal asymmetry, but there are no studies on it.) > > Personally, I had saw lots of change with repositioning, but not enough in the end. > Annie > > > > > > From: JenandLuli@ .. <JenandLuli@ ...> > > Subject: Re: study data one-sided? > > Plagiocephaly > > Date: Tuesday, March 24, 2009, 6:24 AM > > > > > > > > > > > > > > > > > > > > > > > > > > Unfortunately - The nature of banding - or not banding - does not lend itself to following those who do not band and do not do repo. Simply because those that do not band do not have a problem and therefore there is nothing to follow. If there was something to follow (like mod to severe asym) and to choose to not band would be irresponsible on the part of the parent and the provider. You can't take 2 kids with the same asym and say " We are going to band this baby and not going to band that baby to see what happens " . > > > > > > > > There have been studies of kids who have grown that had torticollis and plagio (I think it was in China) - And it showed long term effects. > > > > http://www.thefilya ws.com/plagio/ cti1196.pdf > > > > > > > > > > > > > > > > Jen > > > > Mom to Luli - 3 yrs old > > > > Torticollis, Plagio, Syringomyelia > > > > > > > > > > study data one-sided? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi again, > > > > > > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your > > experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say. > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 , I do think that this group is pro helmet, but that's probably because many of us have had such bad experiences with getting bad advice NOT to pursue a helmet when our cases clearly warranted it. In my case, it was not offerred until it was too late to get correction into the normal range. Deciding not to put your child in a helmet is a valid choice, but I think that before making it, one should be prepared with all of the information. There is misinformation out there and, in some cases, the pediatricians are spreading it. We are all just trying to make sure that each parent is fully informed before deciding. I would have given anything to have found this group a year ago and had someone recommend that I not wait for 's head to correct itself. And, to hear that what I was being told was the same thing that others had been told and their baby's heads had not rounded out on their own. I think that is why most of us respond the way that we do. We wish we could go back and redo things for our own babies. We will probably be among on the older plagio group soon and we also be among the parents who have regrets because we didn't get the information soon enough. Most experts do recognize that a helmet is not necessary for mild cases, but some parents choose to do so anyway and their decision should also be respected. It sounds like you are happy with your decision and that's all that should matter. , mom to , 19 months 19 weeks in STARband plus CST land study data one-sided?> > > > > > > > > > > > > > Hi again,> > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your> experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.> > > > -> > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2009 Report Share Posted March 29, 2009 Nicely said Sent via BlackBerry from T-MobileFrom: melanie.watson@...Date: Mon, 30 Mar 2009 01:48:01 +0000 (UTC)<Plagiocephaly >Subject: Re: study data one-sided? , I do think that this group is pro helmet, but that's probably because many of us have had such bad experiences with getting bad advice NOT to pursue a helmet when our cases clearly warranted it. In my case, it was not offerred until it was too late to get correction into the normal range. Deciding not to put your child in a helmet is a valid choice, but I think that before making it, one should be prepared with all of the information. There is misinformation out there and, in some cases, the pediatricians are spreading it. We are all just trying to make sure that each parent is fully informed before deciding. I would have given anything to have found this group a year ago and had someone recommend that I not wait for 's head to correct itself. And, to hear that what I was being told was the same thing that others had been told and their baby's heads had not rounded out on their own. I think that is why most of us respond the way that we do. We wish we could go back and redo things for our own babies. We will probably be among on the older plagio group soon and we also be among the parents who have regrets because we didn't get the information soon enough. Most experts do recognize that a helmet is not necessary for mild cases, but some parents choose to do so anyway and their decision should also be respected. It sounds like you are happy with your decision and that's all that should matter. , mom to , 19 months19 weeks in STARband plus CSTland study data one-sided?> > > > > > > > > > > > > > Hi again,> > > > I've been trying to do research about plagiocephaly and the amount of change a child's head can go through without an orthotic/helmet. I've found a lot of data about how a child's head shape can be improved through use of a helmet, but none about what happens without the use of a helmet. Does this data simply not exist? I don't imagine that everyone who visits Cranial Tech or any other company gets a helmet, right? I mean, there is a significant scare factor and when dealing with the well being of your child, I bet the percent of people that opt to band their kids is high. But still there must be some parents that chose not to, especially considering that it seems from my reading that many/most pediatricians say it is not necessary, along with even neurologists (who I never considered visiting). Some people have to be taking the advice of pediatricians and not banding I would think. So if any of those read this forum, please speak up and share your> experience. The way the data appears, I am leaning to think that people who chose not to band had no issues whatsoever in the future, perhaps not even cosmetic ones, which would explain why no one speaks up... maybe there is just nothing to say.> > > > -> > > > > > > > > > > > > > > > > Job Hunting? Start with the companies that posted job openings this week.> Quote Link to comment Share on other sites More sharing options...
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