Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Don't feel so sad. Hopefully you'll start seeing results soon and you'll feel happier about your decision. Have you tried decorating his band? I do stickers for my daughter's but I know other parents on this board have painted theirs and they look absolutely fabulous. You can paint it yourself or have it airbrushed. Hang in there, Leila, Maysa, 15 months old, 5 weeks left in DOC band 2 www.mymaysa.wordpress.com From: altosax99 <EJO1004@...>Subject: Sad MommyPlagiocephaly Date: Wednesday, April 15, 2009, 11:24 AM Is anyone else dealing with the pain of seeing their child in the DOC band? I could really use some support. My DS has had his on only a week now, and I have cried at least once a day every day. I know it is best for him, but my heart is broken. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Yea we all feel upset at first. I paint my sons band weekly and add stickers with cute sayings. Right now it says mamas cookie monster. At first it upset me, but it doesn't bug him. It bugs parents more but you will get used to itSent via BlackBerry from T-MobileFrom: "altosax99" Date: Wed, 15 Apr 2009 15:24:34 -0000<Plagiocephaly >Subject: Sad Mommy Is anyone else dealing with the pain of seeing their child in the DOC band? I could really use some support. My DS has had his on only a week now, and I have cried at least once a day every day. I know it is best for him, but my heart is broken. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 I may not be popular for what I am about to say, but has anyone stopped and thought about the parents who deal with permanent disabilities with their children compared to what we are going through? What we are going through is temporary, yes, it can be sad to see your beautiful little baby in a "helmet", but it goes fast. Keep it in perspective, go out in public, kiss their chubby little cheeks, and move on. Be thankful that what we are all dealing with can be fixed. I am not trying to chastise your feelings because we have all had them, there are hard days, but again, this will pass. There is lots of support on this site that you can draw from, decorating the helmet, ways to deal with stares, and much much more. From: altosax99 <EJO1004@...>Plagiocephaly Sent: Wednesday, April 15, 2009 10:24:34 AMSubject: Sad Mommy Is anyone else dealing with the pain of seeing their child in the DOC band? I could really use some support. My DS has had his on only a week now, and I have cried at least once a day every day. I know it is best for him, but my heart is broken. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 I've been sad for my son esp. b/c he has never adjusted well to the Band and we actually had to change a lot of things (sleep with him) and he became esp needy; he used to be a great sleeper, a lot more independent. I saw the changes in his personality, but it's temporary. We're on our 2nd band (with great results) and he still does not like it, but he tolerates it. I know that it would be so much worse for him if I didn't get him this necessary medical treatment. I figure if my son broke his leg, I'd get a cast. I'd feel sad but I have to do it, as the adult, and get him healed. Any personality changes are not permanent b/c people, esp. babies/children are very resilient. I'd say my baby was one of the most severe cases and one of the babies who adjusted the worst. But I wouldn't change anything and I'm grateful that I have him in a Band and he'll be normal in a few months. I only feel really sorry for babies who have plagio and their parents choose not to band them. Good luck and know that this too shall pass. That thought helps me. > > I may not be popular for what I am about to say, but has anyone stopped and thought about the parents who deal with permanent disabilities with their children compared to what we are going through? What we are going through is temporary, yes, it can be sad to see your beautiful little baby in a " helmet " , but it goes fast. Keep it in perspective, go out in public, kiss their chubby little cheeks, and move on. Be thankful that what we are all dealing with can be fixed. I am not trying to chastise your feelings because we have all had them, there are hard days, but again, this will pass. There is lots of support on this site that you can draw from, decorating the helmet, ways to deal with stares, and much much more. > > > > > ________________________________ > From: altosax99 <EJO1004@...> > Plagiocephaly > Sent: Wednesday, April 15, 2009 10:24:34 AM > Subject: Sad Mommy > > > > > > Is anyone else dealing with the pain of seeing their child in the DOC band? I could really use some support. My DS has had his on only a week now, and I have cried at least once a day every day. I know it is best for him, but my heart is broken. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Kirsten Hany <kirsten.hany@...> wrote: > > I may not be popular for what I am about to say, but has anyone stopped and thought about the parents who deal with permanent disabilities with their children compared to what we are going through? I like what you say here! A friend of mine has a child with a genetic metabolic disorder. It's quite the opposite: no one would know by looking at him that anything's wrong, but he is going to have a special diet and drugs for the rest of his life. Specialists don't even know that the treatment really works, and there are numerous potential problems ahead for him. Believe it or not, that friend of mine is always thinking of how this could be her fault, even though it was just bad luck that she and her husband both have that rare gene (and they didn't know about it and the amnio didn't test for it). So, I think it is just in our nature as mothers to feel responsible for everything that goes wrong for our children. It's a result of our overwhelming love for them, but it must be kept in check! You will miss valuable time bonding with your child if you allow yourself to get depressed about something that is not a big deal and actually being fixed right now!!!! Quote Link to comment Share on other sites More sharing options...
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