Re: Sad Mommy

[Guest guest]

>

> Is anyone else dealing with the pain of seeing their child in the DOC band? I

could really use some support. My DS has had his on only a week now, and I have

cried at least once a day every day. I know it is best for him, but my heart is

broken.

>

Hi, my son is being fitted next week for his helmet and I'm already crying

everyday. I feel that I am to blame for him having to go through it. The guilt

is overwhelming... " what if I had done things different, could I have prevented

it " . I feel like a bad mom. Everyone tells me it is not my fault but I see all

the nice rounded heads and I think " what did they do differently? " . I also feel

I was uninformed about back-sleeping and the side-effects. My pediatrician could

have helped more by suggesting repositioning, instead of, " it will round out on

it's own " .

I know how you feel though. Everyone keeps telling me that it is harder on the

parents than the child, so I am trying to focus on that. It is for the

best....Hang in there!

(Ian, 5 1/2 mos.)

[Guest guest]

My DS has had his STARband for a week and I too have cried every day.

Especially with all this shifting that goes on with the STARband...it's painful

to see his ear scrunched up and his eye being pushed down and he can't move his

head back and forth without the band doing something funky to his face....so

yes, it is painful and it sucks but I keep telling myself that it will get

better because it seems that there is a breaking in period for both the parents

and the child. I have already seen some growth, so I know that the decision to

band is the right thing....I'm also dealing with second guessing myself on

deciding on the STARband.

One day at a time and acting like everything is okay because I do agree that

kids pick up on sadness or distress.

You're not alone!

>

> Is anyone else dealing with the pain of seeing their child in the DOC band? I

could really use some support. My DS has had his on only a week now, and I have

cried at least once a day every day. I know it is best for him, but my heart is

broken.

>

[Guest guest]

My son gets fitted for his first DOC band tomorrow. I think as parents we all go

through the challenges (including the guilt and pain) of making this decision

for our child. I've second guessed my decision to move forward getting my son's

band every day. Tomorrow we're there ... and I am scared to death, heart broken,

confused, depressed, emotionally a mess ... and yet deep down I know this is the

right thing to do for my son.

Hang in there and know that you are not alone.

, 13 months - DOC Band 4/16/09

, 3 years

>

> Is anyone else dealing with the pain of seeing their child in the DOC band? I

could really use some support. My DS has had his on only a week now, and I have

cried at least once a day every day. I know it is best for him, but my heart is

broken.

>

[Guest guest]

---

My son wore a starband helmet at 11 mon. until almost 18 mon. and it

didn't work for him. Doctors kept telling me it would round out but it never

did. It was too late! Now I have a 6month old and have kept him off his head

during the day since I brought him home. I have avoided going for rides so that

he wouldn't be on his head. I have done everything to avoid him from being on

his head. Actually, I have stressed myself out!! Now he has a flat spot on his

right side. He just continued to sleep on that side during the night. I was

waking up every hour to reposition him. You cannot blame yourself!I too look at

all the round heads of my nieces and nephews and wonder why my kids get flat

spots. I went to the helmet place and they told me its minimal and that

insurance won't pay for it but there is some asymetry. If his ears are off then

that's enough for me to get him a helmet! He told me to come back in a month.

Aiden will be 61/2 mon. by then. I hope that it won't be too late by then. I

just don't want to watch this happen again. Do not feel guilty! Just think of it

likes braces. If your kids teeth are not straight you get them braces right?!

You are doing what is in the best interest for your child.

In Plagiocephaly , " fox7030 " <Fox7030@...> wrote:

>

>

> >

> > Is anyone else dealing with the pain of seeing their child in the DOC band?

I could really use some support. My DS has had his on only a week now, and I

have cried at least once a day every day. I know it is best for him, but my

heart is broken.

> >

> Hi, my son is being fitted next week for his helmet and I'm already crying

everyday. I feel that I am to blame for him having to go through it. The guilt

is overwhelming... " what if I had done things different, could I have prevented

it " . I feel like a bad mom. Everyone tells me it is not my fault but I see all

the nice rounded heads and I think " what did they do differently? " . I also feel

I was uninformed about back-sleeping and the side-effects. My pediatrician could

have helped more by suggesting repositioning, instead of, " it will round out on

it's own " .

>

> I know how you feel though. Everyone keeps telling me that it is harder on

the parents than the child, so I am trying to focus on that. It is for the

best....Hang in there!

>

> (Ian, 5 1/2 mos.)

>

[Guest guest]

Hi. I'm so sorry that you are so sad. Instead of focusing on the fact that he

is wearing the band, try to focus on the fact that you are doing a GREAT thing

for him! You are helping him by correcting his headshape and you should be

PROUD of that. When my Daughter was in her band and I went out in public

with her, I was never upset or bothered by people staring at her.... I used it

as a chance to educate other people and feel proud that I was doing everything I

could for her.

Jen

>

> Is anyone else dealing with the pain of seeing their child in the DOC band? I

could really use some support. My DS has had his on only a week now, and I have

cried at least once a day every day. I know it is best for him, but my heart is

broken.

>

[Guest guest]

Hi there. I know EXACTLY how you feel! I hated the fact that my son Hayden had

to wear the DOC band. What made it easier for me, was seeing him in it. He

really doesn't notice it all and could care less if it's on him or not. If it

doesn't bother him, why would I let it bother me? He's going on 8 weeks with it

right now and I couldn't be happier with his progress. Hang in there, because in

the end, it will all be worth it. Not to mention, these past 8 weeks have flown

by!

[Guest guest]

hang in there, hon! we all have our bad days—when i have mine i just thank goodness alex's issues are temporary and treatable (it could be so much worse). time will go by quickly and soon the helmet will be a distant memory. chin up!!

hollymum to 10-month-old twins alex (in doc band since 1/05/09) and max (no helmet necessary)On Wed, Apr 15, 2009 at 2:16 PM, lindsayfkelly <lindsayfkelly@...> wrote:

Hi there. I know EXACTLY how you feel! I hated the fact that my son Hayden had to wear the DOC band. What made it easier for me, was seeing him in it. He really doesn't notice it all and could care less if it's on him or not. If it doesn't bother him, why would I let it bother me? He's going on 8 weeks with it right now and I couldn't be happier with his progress. Hang in there, because in the end, it will all be worth it. Not to mention, these past 8 weeks have flown by!

[Guest guest]

I cried every day for the first month. It got a little better, but when we

would get stares and comments, I would cry again. I had a lot of trouble with

it, but it Never bothered our son thankfully. I tried to tell my self I was

doing the best thing for him. We are down to just night wear and we are happy

with his head. I hope the time in the band passes quickly for you!

Robin

SW Ohio

>

> Is anyone else dealing with the pain of seeing their child in the DOC band? I

could really use some support. My DS has had his on only a week now, and I have

cried at least once a day every day. I know it is best for him, but my heart is

broken.

>

[Guest guest]

Just think good thoughts for the future results! We were so excited to get our

daughter into her DOC band because her plagiocephaly and brachycephaly were so

bad. We had to wait 2 extra weeks for her imaging because our pediatrician was

on vacation and couldn't do the letter of necessity and RX. For us, we were

counting down the days until she got in the band. And it was worth it - she

graduated in mid-February and had fantastic results. She was in 2 bands for a

total of 5 months (we expected 4 months of banding, but she was very sick with

RSV and her head didn't grow at all for several weeks). I decorated her bands

with stickers (2 different themes for each band). First we started with

flowers, then flowers and kissing frogs, then aquarium theme, then flowers and

butterflies. It made a big difference in not looking so serious. People who

asked us about her band were generally friendly and not rude or mean. I think

the bands are just becoming more recognized, at least where we live. One couple

even showed us their babies head and asked us where we got her band. We

actually ran into them at the DOC office 2 months later!

Good luck and it will be over before you know it!

> >

> > Is anyone else dealing with the pain of seeing their child in the DOC band?

I could really use some support. My DS has had his on only a week now, and I

have cried at least once a day every day. I know it is best for him, but my

heart is broken.

> >

>

[Guest guest]

,

Wow - I'm really surprised that the band didn't work for your older child. What do you attribute that to?

Re: Sad Mommy

--- My son wore a starband helmet at 11 mon. until almost 18 mon. and it didn't work for him. Doctors kept telling me it would round out but it never did. It was too late! Now I have a 6month old and have kept him off his head during the day since I brought him home. I have avoided going for rides so that he wouldn't be on his head. I have done everything to avoid him from being on his head. Actually, I have stressed myself out!! Now he has a flat spot on his right side. He just continued to sleep on that side during the night. I was waking up every hour to reposition him. You cannot blame yourself!I too look at all the round heads of my nieces and nephews and wonder why my kids get flat spots. I went to the helmet place and they told me its minimal and that insurance won't pay for it but there is some asymetry. If his ears are off then that's enough for me to get him a helmet! He told me to come back in a month. Aiden will be 61/2 mon. by then. I hope that it won't be too late by then. I just don't want to watch this happen again. Do not feel guilty! Just think of it likes braces. If your kids teeth are not straight you get them braces right?! You are doing what is in the best interest for your child. In Plagiocephaly , "fox7030" <Fox7030@...> wrote:>> > >> > Is anyone else dealing with the pain of seeing their child in the DOC band? I could really use some support. My DS has had his on only a week now, and I have cried at least once a day every day. I know it is best for him, but my heart is broken.> >> Hi, my son is being fitted next week for his helmet and I'm already crying everyday. I feel that I am to blame for him having to go through it. The guilt is overwhelming..."what if I had done things different, could I have prevented it". I feel like a bad mom. Everyone tells me it is not my fault but I see all the nice rounded heads and I think "what did they do differently?". I also feel I was uninformed about back-sleeping and the side-effects. My pediatrician could have helped more by suggesting repositioning, instead of, "it will round out on it's own". > > I know how you feel though. Everyone keeps telling me that it is harder on the parents than the child, so I am trying to focus on that. It is for the best....Hang in there!> > (Ian, 5 1/2 mos.)>

[Guest guest]

I agree with everything that has been said. I went through a grieving process when I was told that my daughter's head would not round out on its own. Part of my grieving was realizing that her age made things more difficult; however there is also guilt, sadness, and just general mourning that our kid's heads aren't like everyone else's head.

For me, I was just so relieved to find out that there was hope that this helped tremendously. Then, i just immersed myself into the process, became active online, did lots of research, and got into my problem solving mode. Yes, has had to wear a helmet, but YES, she wasn't too old to get correction from one. And, five months into it, we have improvement. Time has flown by and it will eventually for you as well.

Just think of yourself as a GREAT mom for doing this.

, mom to , 19 months 3 weeks

21.5 weeks in STARband plus CST

land

Re: Re: Sad Mommy

hang in there, hon! we all have our bad days—when i have mine i just thank goodness alex's issues are temporary and treatable (it could be so much worse). time will go by quickly and soon the helmet will be a distant memory. chin up!!hollymum to 10-month-old twins alex (in doc band since 1/05/09) and max (no helmet necessary)

On Wed, Apr 15, 2009 at 2:16 PM, lindsayfkelly <lindsayfkelly@...> wrote:

Hi there. I know EXACTLY how you feel! I hated the fact that my son Hayden had to wear the DOC band. What made it easier for me, was seeing him in it. He really doesn't notice it all and could care less if it's on him or not. If it doesn't bother him, why would I let it bother me? He's going on 8 weeks with it right now and I couldn't be happier with his progress. Hang in there, because in the end, it will all be worth it. Not to mention, these past 8 weeks have flown by!

[Guest guest]

My DS is in a Starband for 12 days now and he does not mind too much. but when

he gets tired he used to scratch his head and now is scratching the helmet and

that makes me sad so see he is not able to comfort himself as used to. Everyone

is right we are doing the right thing and it will pass. I keep telling myself

100 times a day and then I look at Sebastian and he is so cute in it :)my little

football player

it will get better!