Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 Coralie my daughter of 14 years old tried colchicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 I take .06 mg of Colchicine twice a day at the first sign of a flare. It definitely shortens the duration and intensity of the flares. The only problem is that it can cause diarrhea and you must stop taking it when/if that happens. Good luck with your meds and your doctors! -----Original Message-----From: mmjw3 Sent: Thursday, December 27, 2001 11:25 AMTo: Rpolychondritis Subject: colchicineHello!I went to the Rheumatologist on Monday, he was very sweet but said this is so rare, he's only seen 3 cases in his practice. He did a good job of doing the assessment and has ordered an MRI for a tender spot at the top of my neck, to find out what's going on. We talked about some of the choices for "prevention" drugs and he suggested a low dose of Colchicine to start. I'm just curious if anyone else has been on this and found it to be helpful. I realize we are all different, but there's a lot of experience out there I'd like to hear about as I go through my journey, if people are willing to share.I'm scheduled to see Dr. Buckner in January and she will become my ongoing Rheumatologist, so I'm looking forward to that.Thanks!DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Thanks for the information , take care and have a great weekend! > I take .06 mg of Colchicine twice a day at the first sign of a flare. It > definitely shortens the duration and intensity of the flares. The only > problem is that it can cause diarrhea and you must stop taking it when/if > that happens. > > Good luck with your meds and your doctors! > > > colchicine > > > Hello! > I went to the Rheumatologist on Monday, he was very sweet but said > this is so rare, he's only seen 3 cases in his practice. He did a > good job of doing the assessment and has ordered an MRI for a tender > spot at the top of my neck, to find out what's going on. We talked > about some of the choices for " prevention " drugs and he suggested a > low dose of Colchicine to start. I'm just curious if anyone else has > been on this and found it to be helpful. I realize we are all > different, but there's a lot of experience out there I'd like to hear > about as I go through my journey, if people are willing to share. > I'm scheduled to see Dr. Buckner in January and she will become my > ongoing Rheumatologist, so I'm looking forward to that. > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
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