's Home!

[Guest guest]

Hi everyone,

Sorry I haven't been keeping you all updated, all I did was go to the hospital,

come home and sleep, get up shower eat and go back. Things went pretty well,

but the weekend in the hospital turned into a week plus two days. They couldn't

get a picc again. But she only had to get two IV's. Also her culture just grew 2

strains of staph so they decided it was OK to discharge her on orals. Shes on

levaquin, bactrim. zithromax and Tobi. While she was in she got breathing

treatments and vest or pep every 4 hours around the clock. They put her on

inhaled pulmicort along with her usual albuterol, intal, pulmozyme, and Tobi.

Also her pottasium was low so she is back on oral pottasium. She is feeling a

whole lot better and is back in college. She missed a lot but insisted on going

to her anthro lab and got a pass to go last Thurs. We did have the cutest

little roommate, her name was Jasmine and she was 4 1/2. What a cutie.Her mom

stayed in with her the whole time so it was nice having her there to keep an eye

on Ang when I went home to bed. Her mom was super nice too. She had been in

there almost a month, she had a fundo and it got messed up and she couldn't eat

at all, she was getting TPN and lipids (TPN is total IV nutrition. in case you

don't know). Jasmine doesn't have CF so they weren't breaking that rule.

I guess thats about it, now I have like 1000 emails to read but I will probably

just have to delete them all and start over! It is good to be home and to have

Ang home. But she really did need a tuneup, I doubt they let her go so long

next time.

love to all,

mom of age 19 wcf and Nick age 21 no cf