Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 , thank you so much for the letter. I know you have been sick and you still made time for us. THANK you so much. I will get right on them just as soon as I can and send them to everyone I know. We WILL make a difference. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 For all of you who missed 's sample letter, I am sending it again. This you can use to send to family and friends. You may want to add or delete, feel free to do whatever you want. Let's all try to send to at least 10 letters out. We have already had a WONDERFUL response. Let's keep up the good work. Boy what a difference this has made. Thank you again . [insert Current Date] [insert name and address info] Dear [name]: I am writing you about a disease I have been diagnosed with called Relapsing Polychondritis (RP). RP is an uncommon autoimmune disorder involving inflammation of cartilage and other connective tissues of the ears, joints, nose, larynx, trachea, eyes, heart valves, kidneys and blood vessels. It affects each individual differently and may be mild or life threatening. Because it is considered a rare " orphan " disease with an estimated incidence of 3.5 cases per million people, there is not a lot of funding for research into the cause, treatment and cure. That is why I am writing to you. The Relapsing Polychondritis Support and Awareness Foundation is a non-profit organization dedicated to providing support to RP sufferers, their friends and family members in the form of educational material and to promote awareness by distributing educational materials to health care providers. Perhaps most importantly, the RP Foundation raises funds to assist in research to understand the cause and hopefully, one day, find a cure. All monies contributed to the RP Foundation are tax deductible and go directly to support research and educating the public, and medical profession, on this disease. No one in the organization is paid for their work. All members either have RP or a close family member with RP. To learn more about RP and the RP Foundation, visit the RP Foundation's website at www.polychondritis.org. Please help us to continue to support RP research by making a contribution to: RP Foundation, c/o Colloran, 775 Bounty Place, Manteca, California 95337. Any contribution you can make would be deeply appreciated and will be going to a cause that could make a big difference in my life. Very truly yours, [Name] Quote Link to comment Share on other sites More sharing options...
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