Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 my son Spencer has been wearing his helmet for about 4 weeks now and sleeping in it of a night for about 2 weeks. He has Brachy and it does slip a little during the day but that is easily adjustable and our ortho said to just keep adjusting it, because it is not slipping a lot. But night time it is a different story. The last few nights I have woken to Spencer crying because the helmet is coming off completly. Not sure if it is slipping off or if he is pushing it off, because I am asleep myself. Have been in his room while Spencer is asleep and have noticed him trying to scratch the side of his head, but of course the helmet is in the way. Not sure what we can do about the helmet coming off. Cheers, Alison (Tasmania, Australia) Spencer nearly 9 months - Brachy Fletcher 4 years old - CHD Graduate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Hi Alison- Unfortunately, I don't have an answer for your problem. It doesn't sound like the helmet should be that loose that it can just be pushed off or slip off. Does it have a velcro strap closure like most of the ones we use here in the States? Are you seeing results with it? I would be concerned that it is coming off on it's own like that, but I'm not sure what can be done, aside from possibly getting a new helmet. But if you're seeing results, maybe there's nothing to do? I really don't know. If you were here I would say definitely, get another helmet, that's not right. But I'm just not sure what your options are in your area. I'm sorry I can't be of more help. Please keep us posted. Good luck! Jake-21m (tort resolved/rt plagio/DOCBand #2 4 weeks) Jordan-4 > > my son Spencer has been wearing his helmet for about 4 weeks now and > sleeping in it of a night for about 2 weeks. He has Brachy and it does > slip a little during the day but that is easily adjustable and our > ortho said to just keep adjusting it, because it is not slipping a lot. > But night time it is a different story. The last few nights I have > woken to Spencer crying because the helmet is coming off completly. Not > sure if it is slipping off or if he is pushing it off, because I am > asleep myself. Have been in his room while Spencer is asleep and have > noticed him trying to scratch the side of his head, but of course the > helmet is in the way. Not sure what we can do about the helmet coming > off. > > Cheers, > Alison (Tasmania, Australia) > Spencer nearly 9 months - Brachy > Fletcher 4 years old - CHD Graduate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi , Thanks for your reply. Spencer's helmet is a locally made helmet, it has the velcro strap at the side, but that is still done up when I go in of a morning. About a week ago Spencer whacked his head rather hard on the floor (thank-goodness for the helmet) and I wonder if somehow the helmet was damaged. I cant see any physical damage but maybe I dont have the eye to see it. Spencer has been wearing his helmet for 5 weeks now and we are already seeing results. I guess the best thing is that Spencer is not sitting up, so he is spending less and less time on his back. Cheers, Alison (Burnie, TAS, Australia) Spencer 9 months - Brachy, local helmet 5 wks Fletcher 4.5 years old - CHD and Hip Spica Plaster Graduate Get the name you always wanted with the new y7mail email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hi Alison- It sounds like if it seems to be working and you're seeing results, there doesn't seem to be anything to do to keep it on at night. It didn't occur to me at first but maybe it has to do with the fact that he has brachy. I'm thinking maybe the helmet has a lot of room in the back to allow for the head growth and that might be why it's coming off (as opposed to plagio which would only be open on one side and still holding in place on the other). Maybe once his head rounds out some more it won't come off as easily. At least I hope! Good luck and please keep us posted! Jake-22m (tort resolved/rt plagio/DOCBand #2 5 weeks) Jordan-4 > > Hi , > Thanks for your reply. Spencer's helmet is a locally made helmet, it has the velcro strap at the side, but that is still done up when I go in of a morning. About a week ago Spencer whacked his head rather hard on the floor (thank-goodness for the helmet) and I wonder if somehow the helmet was damaged. I cant see any physical damage but maybe I dont have the eye to see it. Spencer has been wearing his helmet for 5 weeks now and we are already seeing results. I guess the best thing is that Spencer is not sitting up, so he is spending less and less time on his back. > Cheers, > Alison (Burnie, TAS, Australia) > Spencer 9 months - Brachy, local helmet 5 wks > Fletcher 4.5 years old - CHD and Hip Spica Plaster Graduate > > > Get the name you always wanted with the new y7mail email address. > www.7.com.au/mail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 My son has this same problem. He's almost 7 months now and has been wearing his helmet for plagiocephaly for about 3 1/2 months. When I check on him during the night his helmet is fine and then when we get up in the morning, he starts to scoot around in his crib a lot and I often find him twirling it on his arm or around his leg! I've asked my dr about this our last few visits, and he has assured me that this is a good sign. It means the child's head is shifting and changing, which is what we want, so the helmet will constantly need adjusting. My dr has also added 2 little tabs that he has pasted onto the bottom corners of his helmet to help it stay a little snugger while still giving him room to grow. I hope this helps! > > my son Spencer has been wearing his helmet for about 4 weeks now and > sleeping in it of a night for about 2 weeks. He has Brachy and it does > slip a little during the day but that is easily adjustable and our > ortho said to just keep adjusting it, because it is not slipping a lot. > But night time it is a different story. The last few nights I have > woken to Spencer crying because the helmet is coming off completly. Not > sure if it is slipping off or if he is pushing it off, because I am > asleep myself. Have been in his room while Spencer is asleep and have > noticed him trying to scratch the side of his head, but of course the > helmet is in the way. Not sure what we can do about the helmet coming > off. > > Cheers, > Alison (Tasmania, Australia) > Spencer nearly 9 months - Brachy > Fletcher 4 years old - CHD Graduate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Hi , Soon found out the reason why the helmet is coming off. Spencer is sticking his thumbs underneath the sides of the helmet and pushing it up and off. It takes a bit of effort, but he can push it off. The good thing is that I just keep putting it back on, sohopefully he will get the message that he needs to keep it on. Cheers Alison (Burnie, TAS, Australia)Spencer 9 months - Brachy, local helmet 6 wksFletcher 4.5 years old - CHD and Hip Spica Plaster Graduate Start at the new 7 for a better online experience - Start Here. Quote Link to comment Share on other sites More sharing options...
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