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Re: Pat Crowly

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Pat Crowly,

Glad you found us here and good to see a male posting. We women out number

you but we want to help all we can. I sure sounds like you have RP. Darn

doctors anyway. There is/are not tests to confirm RP. The doctors just

diagnose by the symptoms. I have only had ear and nose involvement and a

few other exterior areas. When I was diagnosed early on I only had ear

involvement. Only....that was bad enough. Ears about drive you crazy.

Can't lay down with out touching and ear. Try to go to another dr. and see

what they think. You need to be treated and get on the right meds and not

ignored.

I will keep you in my thoughts and prayers. Also will be sending thoughts

that a doctor will pay attention to you! Gish!!!!

Lots of love

Glenda

Saw Rheumy one more time, she still doesn't think I have RP and is

just hoping it will go away on its own. She also said, although very

far fetched, that maybe I have a food allergy though she didn't

really think so. I'm now on no drugs for the ears,(though I have been

popping ibuprofin when I feel one of my ears start to burn, it really

isn't helping I fear) and have no doc appointments scheduled. What

do you all think? This sound like RP or something else? I'm

interested in your opinions and advice.

Thanks, Pat Crowly

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