Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 I downloaded a bunch of research articles from the journal " Gastroenterology " recently and ran across a statement in the patient seletion section that mentioned that pancreatitis patients on long term narcotic use were excluded from the study because it is well known that long term narcotic use alone causes abdominal pain that confounds the determination of " real " pancreatic pain. So my question is, if this is a very well known phenomenom, how do we as patients, determine if our chronic pain isn't due to the pain killers instead of the disease? Is there a way to tell if our pain is actually caused or worsened by narcotic use? Or is this reference to narcotic pain something that hasn't been well substantiated and is more a knee jerk response to our society's moral repugnance of pain medicine usage? My " MOM " (mind over matter) experiment has not elucidated this for me - that is, how do I tell if my pain is true pancreatic pain or side-effects from the oxycodone or an effect of not taking the oxycodone (withdrawal). I fluctuate between taking one 5 mg pill a day to needing 6. Is this an example of the more I take the more I need? I really want to get to the bottom of this so I can figure out if this pain really is a figment of my imagination as I have been told so many times....... I become quite disheartened when reading close to fifty of these published studies (and from well regarded researchers and institutions, by the way) and to run into phrases over and over again that calls us " addicts " and that a total pancreatectomy is the recommended course of action if the doctor believes that the patient has a good chance of needing daily narcotic meds to control pain. I am aghast and extremely put off by this attitude that these pancreas specialists will take the position that it is better to sacrifice a painful, but still functioning pancreas (that is no diabetes, no malabsorption, etc) so that the patient doesn't become dependent on narcotics on a daily basis. It might be just me, or what...but I would rather take 20 mg of oxy a day than have to stick myself a dozen times to monitor my blood sugars and / or to inject insulin. The other impression I am gaining from these studies is that most doctors do not believe in chronic pancreatitis that is idiopathic....that this pain is a psych problem in some why (one article kept refering to " personality disorders " ). I am considering that this may be the reason why we get no respect or sympathetic care from our personal physicians or the ER docs. The professional literature out there, written by some of the doctors that you mention you have seen, is quite discouraging and disheartening. It has made me realize that this is all a trial and error process............and that it may have been a blessing in disguise that my doctor gave up on me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2004 Report Share Posted January 30, 2004 It is discouraging to hear you imply that it is good that your physician gave up on you. I cannot honestly believe that you are going for all of the nonsense you read on the internet, after posting on this website and hearing and or reading all the posts, it is not possible that we all have the same symptoms, pain levels, and same treatments. I know that it is possible for some narcotic medications to cause sphinter of oddi spasms and that med is morphine. Most educated physicians are aware of this and that is why they usually don't order it. If you really doubt yourself, take some time and start a journal. It would be wise to monitor when you take your pain medication and why rate your pain, write down what your doing and what your though process is at this time. It is not unusual for pain to increase during stressful times, anything that stesses the body even situations that we are unaware of can cause undo stress. Keep an open mind, think things through and continue seek support through this group. Atwell LPN Quote Link to comment Share on other sites More sharing options...
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