My Thoughts

[Guest guest]

Thanks for the Reply..My Prayers are with all that have been going

through Different Problems daily.....I Just feel Lead today ,to Pour

Out my heart...Someone sent me a reply that Stated 'I am Sure that

your family will Appreciate all that you do for Xavier ( My Nephew)'

I am Not so Sure that My family does.I am Really Not Looking for

Thanks ,In what I am going to do and have been doing.I do alot of

Research,Print Updates,Send Out letters and emails to

family,friends.Etc.....My Imediant ( Sp*) Family,Like my

Mother,Older sister and Younger sister ( Mother of Xavier ) Seem to

think that whatever Is done for Xavier ,Is done B/c I want The

Praise.....I Lead a Christian Life Now and I am happy In all that I

do ...I can never Please them In anything,even If it is a Good thing

for my nephew...When Xavier was Born ,I never thought that I could

handle the fact that he was Born with a Disease...But,After My

Husband and I moved out to Washington State ,to take care of

Xavier ;While my Sister and her (None caring) Husband worked,I knew

that this was something God sent me to do...He had a Plan for me and

a reason for me being there.....I took it upon myself to be Involved

In all of Xavier's Appts.( As Much as I could) Did research,I also

Took In twins To babysit at the same time that I had Xavier with me

and In the Process of having to do all of His Meds,EVeryday....I In

NO WAY want to be Praised for this....I did all this from my heart..

Xavier,Is a Strongwilled Lil Boy,He has a smile that would Melt

anyones heart,His Laugh will make you Laugh with him,When he Touches

you ,Your face Lights Up from the Love there..I was In Washington

for Little over 1 year,Did My Mother call me ? The Anwser

is 'No' ,The only way my Older sister and I spoke, was Online.I

would and did feel Left Out of family Life back home and Since I

have Left from out there ,They Still Treat me Like I am the Third

party....I do Not Understand it...Was it something that I did ? Why

can't they Just be Happy that Someone was out there for Xavier ? I

can Not anwser for my family,as far as if they are saved....No One

knows thier heart,But from the way they Live and their daily

walk,They are NOT showing any signs of being a Christian...How can

you Not care that someone is doing something for Xavier (Or any

other Sick Child ) ? This Bothers me..I have tried to call them and

ask them for help In Organizing the Cf walk for Next year,But From

their Standpoint ,'It should be all about Money for Personal

Use' ,Greed is a Big part In their walk and Life.! I know that for

Sure! I can Understand my younger Sister being a Little Stressed out

with Her son having a Disease,But she is also Very Much Like the

rest of my family.....She Does Not seem to take Heed to Things that

need to be done for Xavier......She is a GREAT MOTHER,Do Not get me

wrong......Even Now as I am here in Sc,I am Sure that she has done

everything for Xavier...I want to keep doing all that I can to help

fight Cf and find a cure,Plus help make others aware of this Disease

and others.I am Just at The end of my rope here on what to do and

How to approach things.. Thanks for Listening.

~a~