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7yr old w/cp having auto islet transplant..Need Advise

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Hi to all,

We have a 7 yr. old diagnosed with cp at the age of 3.5 yrs, with

idiopathic cp. The IVGTT test (glucose tolerance) shows her insulin

production down less than 50% from last year, meaning that she can

be a Type 1 diabetes at any time. Her CT scan also shows

calcification thru out the pancreas, as well as shrinkage.

We are seeking urgent advice on the following matter:

Does anyone know whether everyone with pancreatitis have to either

go through a pancreatectory (or Puestow) or live on morphine (or

other pain drugs). In other words, are there people out there with

cp that are not in pain, but still exhibit the other symptoms of cp

(i.e.: calcification with little or no pain).

One of the options we are considering is an auto islet cell

transplant with a partial pancreatectomy.

If anyone is going thru a same situation, or can add to this, please

reply back.

Thank you

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